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Aikaterini Kompoliti
Allyson Mayeux
Beate Ritz
Benson T. Massey
Bill Reinhard
Carol Langer
Codi Halbur
Cyndi Roemer
Dr. Michael Guralnick
Elizabeth Thiel
Emma Saunders
Kymberli Roemer
Matthew Beke
Robin Riddle
Samantha Pavey
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Victoria Pena-Cardinali
Vik Khurana
Wolfgang Singer

Neil Versel Neil Versel

MSA Coalition

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Neil Versel

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Diane Adkins Diane Adkins

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Diane Adkins

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Julia Landicho Julia Landicho

MSA NJ

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Julia Landicho

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Liz Dyas Liz Dyas

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Liz Dyas

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Carina Peritore Carina Peritore

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Carina Peritore

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Patricia Libby Patricia Libby

MSA Coalition

Patricia Libby lives in the Los Angeles community of Altadena, California. Her husband Joel Thvedt was diagnosed in 2015 with probable ...

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5 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532410 532410 Patricia Libby lives in the Los Angeles community of Altadena, California. Her husband Joel Thvedt was diagnosed in 2015 with probable MSA-C following a year of unusual symptoms including sleep disturbances and gait and balance problems. Patricia and Joel immediately decided to do two things: (1) gather as much information as they could about MSA, and (2) travel as much as possible with their three sons. Joel battled MSA with grace and dignity, and a wonderful sense of humor, until his death in February 2020. Patricia and Joel met in 1984 when they were fellow students at UCLA Law School, and Patricia is currently an adjunct professor at the University of Southern California Gould School of Law and a legal writing coach in Los Angeles. Patricia served on the MSA Coalition’s General Advisory Council in 2020 and was delighted to join the Board in 2021 as the Interim Chair of the Advocacy Committee. She looks forward to continuing to help others in the MSA community as a tribute to Joel’s incredible attitude and positive outlook throughout his MSA journey.

Patricia Libby

Speaker Profile

Patricia Libby lives in the Los Angeles community of Altadena, California. Her husband Joel Thvedt was diagnosed in 2015 with probable MSA-C ...

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Elaine Douglas Elaine Douglas

MSA Coalition

Elaine has a master’s degree in communication and has worked in global health for over 23 years. She currently manages a clinical trial ...

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6 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532411 532411 Elaine has a master’s degree in communication and has worked in global health for over 23 years. She currently manages a clinical trial in Malawi for the University of Washington (though she now works part-time and from home). Elaine Douglas is the primary caregiver for her wife, Diane, who has MSA. She and Diane have two 23-year-old daughters who provide love and encouragement – as well as tangible support. They also have a strong community of family and friends who help tremendously.

Elaine Douglas

Speaker Profile

Elaine has a master’s degree in communication and has worked in global health for over 23 years. She currently manages a clinical trial in Malawi ...

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Pam Bower Pam Bower

Secretary, MSA Coalition Board of Directors, Chair, Research Committee

Pam has served on the Board of Directors as Secretary since 2013 and has led the Research Committee as Chair through seven research grant ...

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7 Speaker-Profile-Speaker-Profile 0 532027 532027 Pam has served on the Board of Directors as Secretary since 2013 and has led the Research Committee as Chair through seven research grant cycles. Liaising with the Scientific Advisory Board and adhoc peer review committee she administered the grant application and peer review process, culminating in the awarding of over $2 million in research grants since 2013. She maintains an active presence on social media, sharing information and keeping up to date on the latest MSA research news. Her key goals are to encourage worldwide collaboration among the MSA community, promote more awareness, encourage grassroots fundraising and support researchers to find a cure. Pam was recognized by the global MSA community with the JP Schouppe “JiePie” Award for excellence in MSA Advocacy in 2012. She has been nominated four times for the WeGo Health Activist Awards, and was named WeGo Health’s “Best in Show – Facebook” in 2015.

Pam Bower

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Pam has served on the Board of Directors as Secretary since 2013 and has led the Research Committee as Chair through seven research grant cycles. ...

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Frank & Barbara Tinari Frank & Barbara Tinari

MSA NJ

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Frank & Barbara Tinari

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Dr. Gregor Wenning Dr. Gregor Wenning

MSA Coalition Scientific Advisory Board Chair & Bishop Karl Golser Foundation

Prof. Gregor Wenning leads a team of 30 research fellows exclusively dedicated to MSA at the division of clinical neurobiology, medical ...

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9 Speaker-Profile-Speaker-Profile 0 532033 532033 Prof. Gregor Wenning leads a team of 30 research fellows exclusively dedicated to MSA at the division of clinical neurobiology, medical university Innsbruck, Austria. His preclinical and clinical research is reflected in over 600 publications including books and book chapters, 42159 citations, H-Index 104 and 6,8 Mill Euro competitive MSA research funds (https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(12)70052-2/fulltext). He is currently Chair of the MSA study group of the Movement Disorder Society (MoDiMSA-SG - www.movementdisorders.org/MDS/About/Committees--Other-Groups/Study-Groups/Multiple-System-Atrophy.htm) as well as the MDS MSA Diagnostic criteria revision taskforce. He also leads the European MSA (EMSA) study group (www.emsa-sg.org), the first European study group focusing on MSA, which he founded in 1999 with Prof. W. Poewe. He is also member of the Board of Directors of the MSA Coalition and president of its scientific advisory board.

Dr. Gregor Wenning

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Prof. Gregor Wenning leads a team of 30 research fellows exclusively dedicated to MSA at the division of clinical neurobiology, medical university ...

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Don Crouse Don Crouse

Vice Chair - MSA Coalition Board of Directors

Don joined the MSA Coalition in 1998 and is one of the originating Board members. Don became connected to multiple system atrophy as a ...

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10 Speaker-Profile-Speaker-Profile 0 532034 532034 Don joined the MSA Coalition in 1998 and is one of the originating Board members. Don became connected to multiple system atrophy as a result of his marketing career in the pharmaceutical industry, where he worked on two products commonly prescribed to people with MSA. In his 23 years of volunteer service, Don has played an invaluable leadership role in building the MSA Coalition into a world-class charitable organization. In 2012, it was his vision to expand the organization from primarily being a support group into a nonprofit that also funded research and developed educational programming.

Don Crouse

Speaker Profile

Don joined the MSA Coalition in 1998 and is one of the originating Board members. Don became connected to multiple system atrophy as a result of his ...

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Carol Langer Carol Langer

Treasurer, MSA Coalition Board of Directors

Carol Langer trained as a CPA, and after working in public accounting was a senior financial executive for technology companies in the ...

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11 Speaker-Profile-Speaker-Profile jplist-topic-Carol-Langer jplist-topic-Speaker 0 420252 420252 Carol Langer trained as a CPA, and after working in public accounting was a senior financial executive for technology companies in the telecommunications, semiconductor test equipment, software and other technology areas until she retired in 2000 to care for her husband Rob, who was diagnosed with multiple system atrophy in 1998. She joined the Board of Directors and became Treasurer of the Multiple System Atrophy Coalition in 2013, and also serves as a member of the Leadership Board and Chair of the Neuroscience Advisory Committee for Beth Israel Deaconess Medical Center, as well as a Trustee and Treasurer of the Huntington Theatre Company. Carol has an A.B. from Boston University in English Language and Literature and an M.S. from Northeastern University in Accounting.

Carol Langer

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Carol Langer trained as a CPA, and after working in public accounting was a senior financial executive for technology companies in the ...

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Erin Williams Erin Williams

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Erin Williams

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Sheila Lyons, Executive Director Sheila Lyons, Executive Director

MSA Coalition

Sheila Lyons has more than 20 years of extensive non-profit experience as well as strategic, fundraising and financial leadership. She most ...

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13 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532398 532398 Sheila Lyons has more than 20 years of extensive non-profit experience as well as strategic, fundraising and financial leadership. She most recently served as Executive Director of Apollo, where she led the Chicago arts organization through a strategic planning process that revitalized the 147-year-old organization. She previously launched an Associate’s Degree in Entrepreneurship at City Colleges of Chicago, served as the first executive director at the Triad Entrepreneurial Initiative, and was a consultant with Arthur Andersen, LLC..

Sheila Lyons, Executive Director

Speaker Profile

Sheila Lyons has more than 20 years of extensive non-profit experience as well as strategic, fundraising and financial leadership. She most recently ...

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Ian Pickford Ian Pickford

Care Partner - MSA Trust

Ian is the husband and very willing full-time carer of Jackie who has MSA-C.They are not quite having the retirement they planned but love ...

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14 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532388 532388 Ian is the husband and very willing full-time carer of Jackie who has MSA-C.They are not quite having the retirement they planned but love spending time together and have travelled extensively before and after the diagnosis. They do as much as they can in their circumstances and they are both convinced that they will continue to be positive whatever the beast of MSA throws at them! They live in the UK and have been well supported by their NHS, the local hospice and the MSA Trust. They facilitate a support group for four counties within UK and have monthly Zoom meetings where an interesting speaker talks each month followed by round table discussions on whatever topic is relevant to their members.

Ian Pickford

Speaker Profile

Ian is the husband and very willing full-time carer of Jackie who has MSA-C.They are not quite having the retirement they planned but love spending ...

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Jim Davis, Patient Jim Davis, Patient

Jim is 66 years old, married and lives in the Central Texas area. He was diagnosed with MSA in the Spring of 2017. He thought he had had a ...

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15 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532436 532436 Jim is 66 years old, married and lives in the Central Texas area. He was diagnosed with MSA in the Spring of 2017. He thought he had had a stroke and after finding out that he had not he pursued further and found a neurologist who said it was probable MSA. Slurred speech and noticeable balance problems were the first main symptoms. He has participated in two clinical trials for drugs that were to help slow the progression of the disease. He has a son, step son, 2 daughter-in-laws, a grandson and a granddaughter. His wife, Milissa is 59 and they have been married (together) for 21 years. She is a retired high school math teacher. She is Jim's caregiver, but supported in this journey by their children, siblings and many friends. Milissa will join Jim in this session.

Jim Davis, Patient

Speaker Profile

Jim is 66 years old, married and lives in the Central Texas area. He was diagnosed with MSA in the Spring of 2017. He thought he had had a stroke ...

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Chidimma Nguma, MSN, GNP, ANP-BC, ACHPN Chidimma Nguma, MSN, GNP, ANP-BC, ACHPN

University of Texas SW

Chidimma is a board-certified adult nurse practitioner working in UT Southwestern Medical Center's Department of Neurology, working with ...

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16 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532393 532393 Chidimma is a board-certified adult nurse practitioner working in UT Southwestern Medical Center's Department of Neurology, working with Dr. Steven Vernino. Sections include MSA, Autonomic Disorders and the Stroke clinic. Prior to joining the neurology department, she worked at the Harold C. Simmons Comprehensive Cancer Center where she assisted with building a new Palliative Care clinic as well as a Survivorship Program. She is board certified as a Hospice and Palliative Care Nurse Practitioner.

Chidimma Nguma, MSN, GNP, ANP-BC, ACHPN

Speaker Profile

Chidimma is a board-certified adult nurse practitioner working in UT Southwestern Medical Center's Department of Neurology, working with Dr. Steven ...

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Diane Graham Diane Graham

MSA Coalition

Diane leads a monthly support group in Des Moines, Iowa, for anyone who has been touched by multiple system atrophy. Diane’s husband ...

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17 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532392 532392 Diane leads a monthly support group in Des Moines, Iowa, for anyone who has been touched by multiple system atrophy. Diane’s husband Daniel Miller battled the disease from 2012 until he passed away in February 2018. Diane and her husband were both journalists for more than three decades, she with the Des Moines Register and he with Iowa Public Television. Using her journalism background, she assisted the grassroots MSA community with writing press releases to publicize MSA awareness month and the launch of the first medical textbook on MSA. Their daughter, adopted from China, is a senior at Duke University. . Diane is always eager to share her ideas and to support other MSA families.

Diane Graham

Speaker Profile

Diane leads a monthly support group in Des Moines, Iowa, for anyone who has been touched by multiple system atrophy. Diane’s husband Daniel Miller ...

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Lisa Hale, LMSW Lisa Hale, LMSW

Vanderbilt University, MSA Coalition

Lisa Hale is a clinical social worker supporting Vanderbilt University Medical Center's Behavioral and Cognitive Division of Neurology. ...

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18 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532391 532391 Lisa Hale is a clinical social worker supporting Vanderbilt University Medical Center's Behavioral and Cognitive Division of Neurology. Lisa first became acquainted with MSA during the MSA Coalition Conference in 2017 in Nashville and is a member of the General Advisory Council. Lisa is honored to support MSA patients and their families throughout their journey.

Lisa Hale, LMSW

Speaker Profile

Lisa Hale is a clinical social worker supporting Vanderbilt University Medical Center's Behavioral and Cognitive Division of Neurology. Lisa first ...

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William Underwood William Underwood

As a care giver for his wife for almost three years, he tries to stay positive every day and get out to do some errand especially when ...

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19 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532435 532435 As a care giver for his wife for almost three years, he tries to stay positive every day and get out to do some errand especially when things are getting to him. His involvement with his two grandchildren that live with him is his salvation - their activities give him a reason to smile and laugh, getting him over the sad times. He tries to remain aware of ongoing research on the MSA website as many doctors have very little time to read current research and keep up with trials. There is always hope that a miracle drug will be discovered somewhere in the world and he does not want to miss it! Bill participates in MSA Coalition conferences, focus groups, and looks forward to sharing his strategies for coping with others.

William Underwood

Speaker Profile

As a care giver for his wife for almost three years, he tries to stay positive every day and get out to do some errand especially when things are ...

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Victoria Pena-Cardinali, LCSW Victoria Pena-Cardinali, LCSW

Victoria has a Masters Degree in Social Work with a clinical concentration from New York University. She has years of experience in the ...

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20 Speaker-Profile-Speaker-Profile jplist-topic-Victoria-Pena-Cardinali jplist-topic-Speaker 0 420314 420314 Victoria has a Masters Degree in Social Work with a clinical concentration from New York University. She has years of experience in the area of Medical Social Work at Capital Health Systems.Throughout her career, Victoria has been able to work closely with patients and their families to address their unique and personal needs related to management of chronic diseases such as adjustment issues, community reintegration, service connection, advocacy, collaboration, support counseling and transitions of care among many others. In addition to program clinical management and development responsibilities, Victoria is a provider of psychotherapy services for adult individuals and their families treating mood disorders linked to psychosocial stressors related to chronic illness and adjustment issues. Victoria is an MSA NJ Board member, and often facilitates support group meetings as part of her work with this organization.

Victoria Pena-Cardinali, LCSW

Speaker Profile

Victoria has a Masters Degree in Social Work with a clinical concentration from New York University. She has years of experience in the area of ...

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Tom Tait Tom Tait

MSA Coalition

Tom was the caregiver to his wife Liz during her 5 year journey with Multiple System Atrophy – Cerebellum (MSA-C). He has participated in ...

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21 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532389 532389 Tom was the caregiver to his wife Liz during her 5 year journey with Multiple System Atrophy – Cerebellum (MSA-C). He has participated in numerous seminars pertinent to brain disease caregiving and has been attending Carepartners of People with MSA support group webinar since 2014. He has been facilitating the call since 2018 and co-facilitates a Men’s Only Care Partners of People with PSP/MSA/CBD support group. He is able to share his invaluable experience, knowledge and tips to assist others that are on the same journey he took with his wife. He currently works part time and is a Bayada Hospice and CurePSP volunteer.

Tom Tait

Speaker Profile

Tom was the caregiver to his wife Liz during her 5 year journey with Multiple System Atrophy – Cerebellum (MSA-C). He has participated in numerous ...

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Alain Ndayisaba Alain Ndayisaba

Alain Ndayisaba conducted his medical training at the Medical University Innsbruck, Austria with a scientific focus on MSA under the ...

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22 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532434 532434 Alain Ndayisaba conducted his medical training at the Medical University Innsbruck, Austria with a scientific focus on MSA under the mentorship of Prof. Gregor K. Wenning and Prof. Nadia Stefanova, leaders in the MSA field. In addition, Dr. Ndayisaba has been actively engaged in fostering public awareness for MSA as member of the Bishop Dr. Karl Golser Foundation, an international partner of the MSA Coalition. Since 2019, he has been conducting his research in the lab of MSA Coalition Board Member Prof. Vikram Khurana at Brigham and Women’s Hospital, Harvard Medical School, co-mentored by Prof. Wenning and Prof. Stefanova, where his goal is to create a human disease model for MSA in the dish allowing us to understand key pathological events in MSA.

Alain Ndayisaba

Speaker Profile

Alain Ndayisaba conducted his medical training at the Medical University Innsbruck, Austria with a scientific focus on MSA under the mentorship of ...

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Karen Walker Karen Walker

Chief Executive - MSA Trust

Karen Walker was appointed as Chief Executive Officer (CEO) in November 2015 having served as Interim CEO for the previous six months. She ...

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23 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532433 532433 Karen Walker was appointed as Chief Executive Officer (CEO) in November 2015 having served as Interim CEO for the previous six months. She was a personal friend of the Trust’s founder, Sarah Matheson. Karen joined the Board in December 2009 as the Trustee representing the many Support Groups around the country, becoming Services Committee Chair in 2011 and in June 2014 was appointed as Chair of Resources, Audit and Governance – a role she stood down from in June 2015 to act as Interim CEO.

Karen Walker

Speaker Profile

Karen Walker was appointed as Chief Executive Officer (CEO) in November 2015 having served as Interim CEO for the previous six months. She was a ...

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Tricia Stevens, RN, BSN Tricia Stevens, RN, BSN

Mayo Clinic

Tricia Stevens, RN, BSN received her Bachelor of Science degree from Winona State University and has more than 25 years nursing experience. ...

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24 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532409 532409 Tricia Stevens, RN, BSN received her Bachelor of Science degree from Winona State University and has more than 25 years nursing experience. She has cared for neurology patients for ten years; over the past two years, she has been an autonomic nurse and a member of the Multiple System Atrophy (MSA) Care Team. Previously, she was a lumbar puncture nurse and was involved in Parkinson clinical trials as a study coordinator.

Tricia Stevens, RN, BSN

Speaker Profile

Tricia Stevens, RN, BSN received her Bachelor of Science degree from Winona State University and has more than 25 years nursing experience. She has ...

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Rene Utianski, PhD Rene Utianski, PhD

Mayo Clinic

Rene L. Utianski, Ph.D., CCC-SLP is a Senior Associate Consultant in the Division of Speech Pathology at Mayo Clinic in Rochester, ...

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25 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532402 532402 Rene L. Utianski, Ph.D., CCC-SLP is a Senior Associate Consultant in the Division of Speech Pathology at Mayo Clinic in Rochester, Minnesota. She is an Associate Professor of Speech Pathology and Assistant Professor of Neurology in the Mayo Clinic College of Medicine. Her clinical responsibilities include differential diagnosis of acquired and degenerative speech and language disorders. Her research focus is to define the distinguishing clinical characteristics of these neurological disorders to inform expeditious differential diagnoses. She has a particular interest in the lived experience of patients and the ways in which speech-language intervention can support individuals with progressive diseases.

Rene Utianski, PhD

Speaker Profile

Rene L. Utianski, Ph.D., CCC-SLP is a Senior Associate Consultant in the Division of Speech Pathology at Mayo Clinic in Rochester, Minnesota. She is ...

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Margaret Moutvic, MD Margaret Moutvic, MD

Mayo Clinic

Dr. Maggie Moutvic is a graduate of Loyola University Stritch School of Medicine in Maywood, Illinois and completed PM&R residency at ...

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26 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532401 532401 Dr. Maggie Moutvic is a graduate of Loyola University Stritch School of Medicine in Maywood, Illinois and completed PM&R residency at Mayo Clinic in Rochester. She is an Assistant Professor of Physical Medicine and Rehabilitation. Dr. Moutvic’s clinical interests include rheumatic disease and degenerative disorders of the nervous system. Dr Moutvic enjoys collaborating with colleagues within the framework of the Mayo Model of Care and helping patients incorporate non-pharmacologic interventions, such as exercise, into treatment as they live with chronic diseases.

Margaret Moutvic, MD

Speaker Profile

Dr. Maggie Moutvic is a graduate of Loyola University Stritch School of Medicine in Maywood, Illinois and completed PM&R residency at Mayo Clinic ...

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Claudia Chou, MD Claudia Chou, MD

Mayo Clinic

Dr. Claudia Chou is a hospice and palliative care physician at Mayo Clinic in Rochester, Minnesota. Her background is in both neurology ...

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27 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532406 532406 Dr. Claudia Chou is a hospice and palliative care physician at Mayo Clinic in Rochester, Minnesota. Her background is in both neurology (specifically movement disorders) and hospice and palliative care. She is particularly interested in developing models of integrating palliative care into neurology and teaching trainees and providers in neurology and palliative care about neuropalliative care. Her current favorite hobby is chasing after a very active toddler.

Claudia Chou, MD

Speaker Profile

Dr. Claudia Chou is a hospice and palliative care physician at Mayo Clinic in Rochester, Minnesota. Her background is in both neurology (specifically ...

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Laura Rhee, MD Laura Rhee, MD

Mayo Clinic

Dr. Rhee is a consultant and instructor in medicine at Mayo Clinic in Rochester, MN. Dr. Rhee is board certified in Internal Medicine and ...

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28 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532405 532405 Dr. Rhee is a consultant and instructor in medicine at Mayo Clinic in Rochester, MN. Dr. Rhee is board certified in Internal Medicine and Hospice and Palliative Medicine. In addition, she is a Certified Hospice Medical Director. She is currently the director of the outpatient palliative medicine practice and also serves as one of the hospice medical directors for Mayo Hospice. Dr. Rhee has special interests in Neuro Palliative, Integrative Medicine and practice development.

Laura Rhee, MD

Speaker Profile

Dr. Rhee is a consultant and instructor in medicine at Mayo Clinic in Rochester, MN. Dr. Rhee is board certified in Internal Medicine and Hospice ...

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Abraham Labrada-Santiago, MDiv, BCC Abraham Labrada-Santiago, MDiv, BCC

Originally from Mexico City, Abraham is a Palliative Care Chaplain at Mayo Clinic in Rochester, MN, at the in-patient and outpatient ...

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29 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532408 532408 Originally from Mexico City, Abraham is a Palliative Care Chaplain at Mayo Clinic in Rochester, MN, at the in-patient and outpatient setting. His interest is to provide spiritual and emotional support for patients and their families during the journey of serious illness with the goal of maintain dignity and meaning in their life as well as to reduce suffering in order to improve quality of life.

Abraham Labrada-Santiago, MDiv, BCC

Speaker Profile

Originally from Mexico City, Abraham is a Palliative Care Chaplain at Mayo Clinic in Rochester, MN, at the in-patient and outpatient setting. His ...

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Erin Taylor, LICSW, MSW Erin Taylor, LICSW, MSW

Mayo Clinic

Erin grew up in Rochester MN attending graduate school at University of St. Catherine’s/St. Thomas in St. Paul MN. She has worked within ...

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30 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532407 532407 Erin grew up in Rochester MN attending graduate school at University of St. Catherine’s/St. Thomas in St. Paul MN. She has worked within Medical Social Work for almost 20 years. Her background includes Nursing Home Social Work, Hospice Social Work, Trauma, Addictions and Mental Health. She is married with 7 children and enjoys traveling.

Erin Taylor, LICSW, MSW

Speaker Profile

Erin grew up in Rochester MN attending graduate school at University of St. Catherine’s/St. Thomas in St. Paul MN. She has worked within Medical ...

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Gregory Pontone, M.D., M.H.S. Gregory Pontone, M.D., M.H.S.

John Hopkins

Gregory Pontone, M.D., M.H.S. is the director of the Parkinson’s disease Neuropsychiatry Clinic and an Associate Professor in the ...

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31 Speaker-Profile-Speaker-Profile 0 532030 532030 Gregory Pontone, M.D., M.H.S. is the director of the Parkinson’s disease Neuropsychiatry Clinic and an Associate Professor in the Departments of Psychiatry and Neurology at Johns Hopkins University School of Medicine in Baltimore, Maryland. After completing a medicine internship and residency training in psychiatry at Johns Hopkins, Dr. Pontone completed a two-year fellowship in geriatric psychiatry and movement disorders focusing on Parkinson’s disease through the Clinical Research Program of the Morris K. Udall Parkinson’s Disease Research Center. He also completed a fellowship in Clinical Trial Methods in Neurology sponsored by the National Institute of Neurological Disorders and Stroke. He is board certified by the American Board of Psychiatry and Neurology and has an added certification in the specialty of geriatric psychiatry. He serves on the Scientific Review Committee and as the chair of the Cognitive/Psychiatric Working Group for an international consortium of Parkinson's disease researchers, the Parkinson Study Group. He is an editorial board member for the American Journal of Geriatric Psychiatry.

Gregory Pontone, M.D., M.H.S.

Speaker Profile

Gregory Pontone, M.D., M.H.S. is the director of the Parkinson’s disease Neuropsychiatry Clinic and an Associate Professor in the Departments of ...

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Daniel Claassen, MD, MS Daniel Claassen, MD, MS

Vanderbilt University Medical Center

Dr. Daniel Claassen is an Associate Professor of Neurology at Vanderbilt University and a neurologist specializing in the care of patients ...

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32 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 428443 428443 Dr. Daniel Claassen is an Associate Professor of Neurology at Vanderbilt University and a neurologist specializing in the care of patients with neurodegenerative disorders, with particular interest in patients with cognitive dysfunction and movement disorders. He earned his medical degree from the Medical College of Georgia and completed his Neurology residency training at the Mayo Clinic, in Rochester, MN and postdoctoral training at the University of Virginia, in Charlottesville, VA. He is a past recipient of the American Academy of Neurology clinical research training grant, and his work is currently funded by the National Institues of Health.

Daniel Claassen, MD, MS

Speaker Profile

Dr. Daniel Claassen is an Associate Professor of Neurology at Vanderbilt University and a neurologist specializing in the care of patients with ...

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Becky Wellman, PhD, LPMT, MT-BC Becky Wellman, PhD, LPMT, MT-BC

Music Therapist, Neurologic Music Therapy-Fellow, Cleveland Clinic Lou Ruvo ...

Becky Wellman, PhD, LPMT, MT-BC is a board certified, licensed music therapist. Dr. Wellman is a Neurologic Music Therapy-Fellow and has ...

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33 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532036 532036 Becky Wellman, PhD, LPMT, MT-BC is a board certified, licensed music therapist. Dr. Wellman is a Neurologic Music Therapy-Fellow and has additional trainings in grief, therapeutic drumming, guided imagery, dementia approaches, and psychological first aid. She is adjuct instructor of Human Services specializing in elder studies at Ivy Tech Community College of Indiana.

Becky Wellman, PhD, LPMT, MT-BC

Speaker Profile

Becky Wellman, PhD, LPMT, MT-BC is a board certified, licensed music therapist. Dr. Wellman is a Neurologic Music Therapy-Fellow and has additional ...

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Vik Khurana, MD Vik Khurana, MD

Vikram Khurana is on the faculty at Harvard Medical School, an attending neurologist at Brigham and Women’s Hospital and scientific ...

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34 Speaker-Profile-Speaker-Profile jplist-topic-Vik-Khurana 0 428362 428362 Vikram Khurana is on the faculty at Harvard Medical School, an attending neurologist at Brigham and Women’s Hospital and scientific co-founder of Yumanity Therapeutics. He is a medical graduate of the University of Sydney, Australia, and came to Boston as a Fulbright Scholar in 2001, obtaining his Ph.D. in neurobiology from Harvard University in 2006. He completed his residency in neurology at Brigham and Women’s and Massachusetts General Hospitals, and Fellowship training in movement disorders and ataxia at Massachusetts General Hospital. He received postdoctoral scientific training in the laboratories of Susan Lindquist and Rudolf Jaenisch at the Whitehead Institute, where he co-led a study that succeeded in identifying and reversing pathologies in stem cell models of Parkinson's disease (Chung*, Khurana* et al. Science 2013). Vik co-founded Yumanity Therapeutics in December 2014, a company that applies stem-cell technologies to drug discovery in neurodegenerative diseases (http://yumanity.com/about-leadership.php), and joined the Ann Romney Center and Harvard Stem Cell Institute in 2016.

Vik Khurana, MD

Speaker Profile

Vikram Khurana is on the faculty at Harvard Medical School, an attending neurologist at Brigham and Women’s Hospital and scientific co-founder of ...

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Pierre-Olivier Fernagut, PhD Pierre-Olivier Fernagut, PhD

ARAMISE

I Graduated in 2003 from the university of Bordeaux (France) where I did my PhD on the development of mouse models of MSA. After a ...

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35 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532397 532397 I Graduated in 2003 from the university of Bordeaux (France) where I did my PhD on the development of mouse models of MSA. After a post-doctoral fellowship in the department of Neurology at UCLA where I worked on interactions between alpha-synuclein and pesticides, I was appointed in 2007 as a researcher at the French national center for scientific research. My research interests are to identify disease mechanisms and operate the preclinical validation of disease-modifying strategies in MSA. I serve as the coordinator of the scientific advisory board at ARAMISE (French MSA association)

Pierre-Olivier Fernagut, PhD

Speaker Profile

I Graduated in 2003 from the university of Bordeaux (France) where I did my PhD on the development of mouse models of MSA. After a post-doctoral ...

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Elizabeth Coon, MD Elizabeth Coon, MD

Mayo Clinic

I am a movement and autonomic specialist at Mayo Clinic in Rochester, MN. My clinical interests include multiple system atrophy and ...

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36 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532400 532400 I am a movement and autonomic specialist at Mayo Clinic in Rochester, MN. My clinical interests include multiple system atrophy and autonomic failure in movement disorders. My research interests include autonomic failure in the synucleinopathies. I am also interested in the history of neurology and gender issues in medicine. I am the mother of 4 boys and love to run and bike, especially with my boys.

Elizabeth Coon, MD

Speaker Profile

I am a movement and autonomic specialist at Mayo Clinic in Rochester, MN. My clinical interests include multiple system atrophy and autonomic failure ...

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Adele Pattinson, RDN, LD, CNSC Adele Pattinson, RDN, LD, CNSC

Mayo Clinic

Adele Pattinson is a registered dietitian who is also a certified nutrition support clinician at Mayo Clinic in Rochester, Minnesota. She ...

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37 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532404 532404 Adele Pattinson is a registered dietitian who is also a certified nutrition support clinician at Mayo Clinic in Rochester, Minnesota. She received a Bachelor of Science degree from Iowa State University in Clinical Nutrition and completed her internship at the Medical College of Virginia, in Richmond, Virginia. She has been working in the field of for over 30 years presenting at many state and national conferences and contributing to research in the field of nutrition support. She works with a team of nurses, dietitians, nurse practitioners, and physicians that share the passion to decrease malnutrition. She is a self-proclaimed “high calorie, high protein dietitian” working with patients with a variety of medical conditions. It is a pleasure to participate in the conference today.

Adele Pattinson, RDN, LD, CNSC

Speaker Profile

Adele Pattinson is a registered dietitian who is also a certified nutrition support clinician at Mayo Clinic in Rochester, Minnesota. She received ...

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Cathy Shonley, CCC-SLP Cathy Shonley, CCC-SLP

Mayo Clinic

Catherine A. Shonley, MA, CCC-SLP, is an Allied Health Speech-Language Pathologist at Mayo Clinic in Rochester, Minnesota. She earned her ...

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38 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532403 532403 Catherine A. Shonley, MA, CCC-SLP, is an Allied Health Speech-Language Pathologist at Mayo Clinic in Rochester, Minnesota. She earned her BA in communication sciences and disorders from Northwestern University in 2008, followed by her MA in speech-language-hearing sciences from The University of Minnesota in 2010. She was then fortunate enough to return to her hometown to complete her clinical fellowship at Mayo Clinic and has enjoyed the varied patient population and invaluable mentorship of her colleagues there ever since. She works primarily with adults in the inpatient and outpatient settings with a focus on assessing and treating dysphagia arising from neurologic injury and illness, head and neck cancer, and other etiologies.

Cathy Shonley, CCC-SLP

Speaker Profile

Catherine A. Shonley, MA, CCC-SLP, is an Allied Health Speech-Language Pathologist at Mayo Clinic in Rochester, Minnesota. She earned her BA in ...

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Kamal Shouman, MD Kamal Shouman, MD

Mayo Clinic

Dr. Shouman is an autonomic and peripheral nerve specialist at the Mayo Clinic, Rochester, MN. Dr. Shouman did his neurology residency at ...

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39 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532399 532399 Dr. Shouman is an autonomic and peripheral nerve specialist at the Mayo Clinic, Rochester, MN. Dr. Shouman did his neurology residency at Wayne State University, Detroit, MI followed by a neuromuscular fellowship at Cleveland Clinic, Cleveland, OH and then fellowships in autonomic disorders and peripheral nerve at Mayo Clinic, Rochester, MN. Dr. Shouman has a special interest in autonomic neuropathies, peripheral neuropathies, and sweating disorders.

Kamal Shouman, MD

Speaker Profile

Dr. Shouman is an autonomic and peripheral nerve specialist at the Mayo Clinic, Rochester, MN. Dr. Shouman did his neurology residency at Wayne State ...

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David Stamler, MD David Stamler, MD

Alterity Therapeutics

David Stamler, M.D. has over 25 years of experience in the pharmaceutical industry and has led three drug approvals for treatment of ...

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40 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532395 532395 David Stamler, M.D. has over 25 years of experience in the pharmaceutical industry and has led three drug approvals for treatment of neurological disorders. He was appointed Chief Executive Officer of Alterity Therapeutics in January 2021 after having served as the Chief Medical Officer and Senior Vice President, Clinical Development since 2017. Prior to joining Alterity, Dr. Stamler was Vice President and Therapeutic Head for Movement Disorders at Teva Pharmaceutical Industries from 2015 to 2017 after Teva acquired Auspex Pharmaceuticals, where he had served as the Chief Medical Officer since January 2011. While at Auspex/Teva, Dr. Stamler led the development and approval of deutetrabenazine for the treatment of Huntington’s disease, an Orphan disease, and tardive dyskinesia. Dr. Stamler received his M.D. and B.A. degrees from the University of Chicago.

David Stamler, MD

Speaker Profile

David Stamler, M.D. has over 25 years of experience in the pharmaceutical industry and has led three drug approvals for treatment of neurological ...

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Adrienne Glusman Adrienne Glusman

MSA Coalition

Adrienne Glusman is professional speaker, ambassador and advocate on the topic of Millennial Caregiving, sharing her story and journey as ...

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41 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532037 532037 Adrienne Glusman is professional speaker, ambassador and advocate on the topic of Millennial Caregiving, sharing her story and journey as an only-child caregiver to her mom, Hetty, who passed away in 2020 after living with Multiple System Atrophy since 2010. Adrienne's story as Hetty's caregiver was featured in a Wall Street Journal article, 'The Call To Care for Aging Parents Comes Sooner Now'. Her story has also been featured in Health magazine, Toronto Sun and Vox.com to name a few. In addition to keynoting national conferences for Leading Age, National Church Residences and the Multiple System Atrophy Coalition, Adrienne has also been involved with various caregiving campaigns including serving as a caregiver ambassador for EMD Serono's Embracing Carers, Leading Age's 'Carry the Convo' and The Scan Foundation's 'Do You Give a Care'. You can follow her on Instagram and Facebook @younglifeinterrupted, or subscribe to her podcast, Young Life Interrupted where she is lending a voice to her journey so other young caregivers can feel seen, heard and supported.

Adrienne Glusman

Speaker Profile

Adrienne Glusman is professional speaker, ambassador and advocate on the topic of Millennial Caregiving, sharing her story and journey as an ...

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Dr. Patrick Cras Dr. Patrick Cras

MSA Belgium

Patrick Cras, MD, PhD. was born on June 19th, 1958 and graduated as an MD in 1983. His research mainly focuses on neurodegenerative disease ...

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42 Speaker-Profile-Speaker-Profile 0 532026 532026 Patrick Cras, MD, PhD. was born on June 19th, 1958 and graduated as an MD in 1983. His research mainly focuses on neurodegenerative disease such as Parkinson’s disease and dementia, with an emphasis on rapidly developing dementias such as prion disease and Creutzfeldt-Jakob disease. Presently Chairman of the Department of Neurology of the Antwerp University Hospital and professor of neurology at the University of Antwerp, he trained as a research fellow in the Laboratory of Neuropathology at the Born Bunge Institute (IBB, 1983-1985) and in the pathology laboratory at the Antwerp University Hospital followed by a Fogarty Fellowship in neuropathology at Case Western Reserve University, Cleveland Ohio (1989-1991). Back at the University of Antwerp, he developed the biomarkers diagnosis of Alzheimer’s disease in cerebrospinal fluid (CSF). Biobanking of brains, DNA and CSF was started in collaboration with VIB (prof. C. Van Broeckhoven). In 1998 he initiated the surveillance center for human prion diseases in collaboration with Sciensano and the European Center for Disease Control. Our center performs CSF biomarker diagnosis for more than 500 patients per year. Close to all brain autopsies of patients with rapidly developing dementia suspected of CJD in Belgium are performed at the Antwerp University Hospital. He is the medical director of the IBB Biobank. He (co-)authored more than 300 international peer reviewed articles (21412 citations, h index 71, Google scholar 29/8/21). He was Chairman of the Ethics committee, Antwerp University Hospital (2000-2020) and University of Antwerp (2008-2020), a member of several committees of the High Council for Medicine (Hoge Gezondheidsraad), the National Bioethics Committee (Raadgevend Comité voor Bioethiek), previously chairman of the Belgian Board of Neurology and of the Neurology Committee of the Commission for Accreditation of Medical Doctors, as well as chairman of the European Board of Neurology (Union Européenne des Médecins Spécialistes) and Palliative Scientific Panel Chair of the European Academy of Neurology. His current research focuses on biomarkers, neuropathology and phenotype/genotype correlation of neurodegenerative diseases involving dementia and movement disorders. He has also lectured and published on the ethics of human experimentation, end-of-life decisions, euthanasia and research involving vulnerable subjects. He has served as principal investigator in numerous pharmaceutical industry sponsored studies with different compounds in Alzheimer’s and Parkinson’s disease.

Dr. Patrick Cras

Speaker Profile

Patrick Cras, MD, PhD. was born on June 19th, 1958 and graduated as an MD in 1983. His research mainly focuses on neurodegenerative disease such as ...

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Tom Chelimsky, MD Tom Chelimsky, MD

Medical College of Wisconsin

Tom Chelimsky, MD, Medical College of Wisconsin is a neurologist who works with adults and children, along with specialists in many ...

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43 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 428441 428441 Tom Chelimsky, MD, Medical College of Wisconsin is a neurologist who works with adults and children, along with specialists in many disciplines, to diagnose, manage, teach and study disorders of the autonomic nervous system

Tom Chelimsky, MD

Speaker Profile

Tom Chelimsky, MD, Medical College of Wisconsin is a neurologist who works with adults and children, along with specialists in many disciplines, to ...

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Cathy Chapman Cathy Chapman

MSA Coalition

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44 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532394 532394

Cathy Chapman

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Bill Underwood Bill Underwood

MSA Coalition

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45 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532390 532390

Bill Underwood

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Jill Lyons Jill Lyons

MSA Trust

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46 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532331 532331

Jill Lyons

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Michael H. Silber, M.B.Ch.B. Michael H. Silber, M.B.Ch.B.

Mayo Clinic

Dr. Michael H. Silber attended medical school at the University of Cape Town. He trained in Neurology at Groote Schuur Hospital, Cape Town, ...

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47 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532039 532039 Dr. Michael H. Silber attended medical school at the University of Cape Town. He trained in Neurology at Groote Schuur Hospital, Cape Town, and Mayo Clinic, Rochester, MN, USA. He is a Professor of Neurology in the Mayo Clinic College of Medicine and Science. He is a Past President of the American Academy of Sleep Medicine, Past President of the American Board of Sleep Medicine and past Chair of the Sleep Medicine Fellowship Directors’ Council. He received the 2010 Nathaniel Kleitman Award from the American Academy of Sleep Medicine for distinguished service to the profession, the 2013 Sleep Science Award from the American Academy of Neurology, and the 2017 Excellence in Education Award from the American Academy of Sleep Medicine. His research interests include restless legs syndrome, REM sleep behavior disorder and narcolepsy and he has published over 120 peer reviewed publications, 30 book chapters and 3 books.

Michael H. Silber, M.B.Ch.B.

Speaker Profile

Dr. Michael H. Silber attended medical school at the University of Cape Town. He trained in Neurology at Groote Schuur Hospital, Cape Town, and Mayo ...

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Wolfgang Singer, MD Wolfgang Singer, MD

Dr. Wolfgang Singer is a neurologist at Mayo Clinic Rochester with a clinical and research interest in disorders affecting the autonomic ...

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48 Speaker-Profile-Speaker-Profile jplist-topic-Wolfgang-Singer jplist-topic-Speaker 0 421393 421393 Dr. Wolfgang Singer is a neurologist at Mayo Clinic Rochester with a clinical and research interest in disorders affecting the autonomic nervous system in general, and MSA in particular. He was born and raised in Nuremberg, Germany, where I also graduated from medical school. After a research fellowship with Dr. Phillip Low, I completed residency and clinical fellowship training, and joined Mayo Clinic staff in 2009. My research focuses on various aspects of MSA, including prodromal disease stages, discovery of novel biomarkers, factors affecting survival, and novel treatment strategies.

Wolfgang Singer, MD

Speaker Profile

Dr. Wolfgang Singer is a neurologist at Mayo Clinic Rochester with a clinical and research interest in disorders affecting the autonomic nervous ...

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Dr. Phillip Low Dr. Phillip Low

Mayo Clinic

Dr. Phillip Low is Robert D and Patricia E Kern Professor of Neurology. His training and interests in autonomic testing and autonomic ...

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49 Speaker-Profile-Speaker-Profile 0 532300 532300 Dr. Phillip Low is Robert D and Patricia E Kern Professor of Neurology. His training and interests in autonomic testing and autonomic disorders began in Australia. He has been at Mayo Clinic, Rochester, Minnesota since 1976. At Mayo, he founded the Mayo Clinical Autonomic Laboratory in 1983. He headed an Autonomic Disorders Program Project followed by MSA Program Project and was PI of a randomized clinical trial of Rifampicin in MSA. His recent research, with Wolfgang Singer, has focused on biomarkers specific to MSA and phenoconversion of prodromal and preclinical MSA. The goal is to identify early, prodromal and preclinical MSA and couple that approach with finding effective treatment to slow/reverse progression of MSA.

Dr. Phillip Low

Speaker Profile

Dr. Phillip Low is Robert D and Patricia E Kern Professor of Neurology. His training and interests in autonomic testing and autonomic disorders began ...

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Gal Bitan, MD Gal Bitan, MD

UCLA

Gal Bitan is a Professor of Neurology at UCLA who studies the phenomenon of abnormal protein aggregation in neurodegenerative disease, ...

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50 Speaker-Profile-Speaker-Profile 0 532032 532032 Gal Bitan is a Professor of Neurology at UCLA who studies the phenomenon of abnormal protein aggregation in neurodegenerative disease, including Alzheimer’s disease, Parkinson’s disease, multiple system atrophy, and amyotrophic lateral sclerosis. Dr. Bitan received his PhD Summa cum Laude from the Hebrew University of Jerusalem. Before joining the faculty of the Medical School at UCLA, he did postdoctoral research at Harvard Medical School and its affiliated hospitals. Dr. Bitan has published about 140 research articles, reviews, and book chapters and has trained over 100 students, postdocs, and advanced researchers. He is a member of the editorial boards of several scientific journal and a frequent reviewer for many national and international journals and funding agencies.

Gal Bitan, MD

Speaker Profile

Gal Bitan is a Professor of Neurology at UCLA who studies the phenomenon of abnormal protein aggregation in neurodegenerative disease, including ...

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Kymberli Roemer Kymberli Roemer

Kym Roemer is the Board Chair and Co-Founder of MSA NJ. She has been involved in Multiple System Atrophy advocacy since losing her mother ...

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51 Speaker-Profile-Speaker-Profile jplist-topic-Kymberli-Roemer jplist-topic-Speaker 0 420359 420359 Kym Roemer is the Board Chair and Co-Founder of MSA NJ. She has been involved in Multiple System Atrophy advocacy since losing her mother to MSA over a decade ago. She is driven to honor her mother's legacy by supporting patients and their caregivers as they battle MSA. Kym, a lifelong New Jersey resident, holds two Master's degrees in education and management and currently works as a consultant in the pharmaceutical industry.

Kymberli Roemer

Speaker Profile

Kym Roemer is the Board Chair and Co-Founder of MSA NJ. She has been involved in Multiple System Atrophy advocacy since losing her mother to MSA over ...

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Samantha Pavey Samantha Pavey

Samantha is the nurse specialist for the South of England. She trained at Addenbrookes Hospital in Cambridge and has over 25 years of ...

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52 Speaker-Profile-Speaker-Profile jplist-topic-Samantha-Pavey 0 428368 428368 Samantha is the nurse specialist for the South of England. She trained at Addenbrookes Hospital in Cambridge and has over 25 years of experience. She has worked in neurology most of her career, including Atkinson Morley’s Hospital in Wimbledon and later as a Ward Sister in Hertfordshire. She has worked in the hospice setting and within the charity sector at management level. Most recently she worked as a Parkinson’s Disease Nurse Specialist and undertook further studies at London South Bank University.

Samantha Pavey

Speaker Profile

Samantha is the nurse specialist for the South of England. She trained at Addenbrookes Hospital in Cambridge and has over 25 years of experience. She ...

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Topher Schott Topher Schott

MSA Coalition

My mother was diagnosed with multiple system atrophy in the summer of 2017. I have really appreciated the support network MSA Coalition ...

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53 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532038 532038 My mother was diagnosed with multiple system atrophy in the summer of 2017. I have really appreciated the support network MSA Coalition offers in the “onboarding phase” of MSA. I have attended the last three in-person Patient & Family Conferences in Nashville, San Francisco, and Orlando.Given that my mother lives in Maine and I live in the DC metro area, my relationship as caregiver may be unique. My siblings and I have “spread the wealth” in taking care of the business – one takes on “moving to single level housing,” another takes on doctors’ appointments in Boston, and I took on “fun committee.” It is always important to enjoy life, but even more important to cherish the fun times once diagnosed with such a crappy disease like MSA.

Topher Schott

Speaker Profile

My mother was diagnosed with multiple system atrophy in the summer of 2017. I have really appreciated the support network MSA Coalition offers in the ...

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Christy Ross, PT, DPT, GCS, CDP, MSCS Christy Ross, PT, DPT, GCS, CDP, MSCS

Physical Therapist, Neuro Rehabilitation Services Cleveland Clinic Lou Ruvo ...

Christy Ross, PT, DPT, CDP, MSCS, and Board-Certified Geriatric Clinical Specialist, completed a geriatric residency program at University ...

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54 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 532035 532035 Christy Ross, PT, DPT, CDP, MSCS, and Board-Certified Geriatric Clinical Specialist, completed a geriatric residency program at University of Delaware following completion of her DPT at Creighton University. Dr. Ross continued her studies at the University of Michigan in Advanced Clinical Dementia Practice. For the past 10 years, she has practiced in the outpatient neurodegenerative setting at the Cleveland Clinic Lou Ruvo Center for Brain Health, Las Vegas, NV. She has shared her passion through publications, lectures, mentorship, and community programs that serve the aging neurodegenerative population.

Christy Ross, PT, DPT, GCS, CDP, MSCS

Speaker Profile

Christy Ross, PT, DPT, CDP, MSCS, and Board-Certified Geriatric Clinical Specialist, completed a geriatric residency program at University of ...

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Cyndi Roemer Cyndi Roemer

Cyndi has served as the Chairperson of the MSA Coalition since 2017. A life-long New Jersey resident, Cyndi completed her doctoral work at ...

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55 Speaker-Profile-Speaker-Profile jplist-topic-Cyndi-Roemer jplist-topic-Speaker 0 421705 421705 Cyndi has served as the Chairperson of the MSA Coalition since 2017. A life-long New Jersey resident, Cyndi completed her doctoral work at Columbia University and is currently a full-time mathematics professor. Cyndi was a primary caregiver to her mother, Dolores, who lost her battle with MSA on Mother’s Day 2009, after which Cyndi became an outspoken advocate for support, education, and research. If those of us who have travelled this path do not help, then who will?” Cyndi’s areas of interests on the Board include education and conference planning, along with support services. She has been a driving force in the development of the MSA Global Advocacy Consortium, bringing together established charities to increase support and education worldwide and strengthen the voice of the MSA community.

Cyndi Roemer

Speaker Profile

Cyndi has served as the Chairperson of the MSA Coalition since 2017. A life-long New Jersey resident, Cyndi completed her doctoral work at Columbia ...

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Dr. Guillaume Lamotte Dr. Guillaume Lamotte

Mayo Clinic

I am a neurologist with subspecialty training in movement disorders and autonomic disorders. I completed my medical school, neurology ...

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56 Speaker-Profile-Speaker-Profile 0 532031 532031 I am a neurologist with subspecialty training in movement disorders and autonomic disorders. I completed my medical school, neurology residency and my movement disorders training in France. I also did a neurology residency in the United States between the National Institutes of Health and Georgetown University Hospital in Washington, DC, and a fellowship in autonomic disorders at the Mayo Clinic in Rochester, MN. I am an assistant professor of neurology in the movement disorders division at the University of Utah in Salt Lake city. I see patients in the clinic and I do research on autonomic dysfunction in patients with movement disorders such as multiple system atrophy or Parkinson's disease.

Dr. Guillaume Lamotte

Speaker Profile

I am a neurologist with subspecialty training in movement disorders and autonomic disorders. I completed my medical school, neurology residency and ...

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Margot Escott, MSW, LCSW Margot Escott, MSW, LCSW

Margot Escott, MSW, LCSW is a clinical social worker in private practice in Naples for 35 years. She is a graduate of NYU School of Social ...

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57 Speaker-Profile-Speaker-Profile 0 532029 532029 Margot Escott, MSW, LCSW is a clinical social worker in private practice in Naples for 35 years. She is a graduate of NYU School of Social Work. She has been working with people with Parkinson’s Disease and Care Partners for over 20 years. She was a care partner for her father who had Lewey Body Disease She is nationally known for her workshops on “The Healing Power of Laughter & Play”. She is an improviser and teaches applied improv in Naples, Florida. She developed one of the first national programs for “Improv for Persons with Parkinson’s and their Care Partners” and “Improv for Anxiety”. She also teaches Mindfulness in her improv classes. Her podcast, Improv Interviews, features national and international improvisers and therapists who use improv in their clinical practices. She has been named as Social Worker of the Year in Lee and Collier County. Her website is at improv4wellness.com

Margot Escott, MSW, LCSW

Speaker Profile

Margot Escott, MSW, LCSW is a clinical social worker in private practice in Naples for 35 years. She is a graduate of NYU School of Social Work. She ...

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Susan Perlman Susan Perlman

Biohaven: Understanding Potential Treatments and Clinical Trials

Dr Perlman completed her MD degree at the medical school of the State University of New York Stony Brook. She completed her Neurology ...

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58 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 428444 428444 Dr Perlman completed her MD degree at the medical school of the State University of New York Stony Brook. She completed her Neurology residency and fellowship in Neurogenetics at UCLA Medical Center, where she has been on the clinical faculty since 1981. She is director of the Ataxia Center, the Huntington’s Disease Center of Excellence, and the Neurogenetics Clinical Trials Unit.

Susan Perlman

Speaker Profile

Dr Perlman completed her MD degree at the medical school of the State University of New York Stony Brook. She completed her Neurology residency and ...

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Bill Reinhard Bill Reinhard

Bill Reinhard graduated from the University of Wisconsin in 2002. He has been working at Froedtert Hospital since 2003 with patients with ...

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59 Speaker-Profile-Speaker-Profile jplist-topic-Bill-Reinhard 0 428370 428370 Bill Reinhard graduated from the University of Wisconsin in 2002. He has been working at Froedtert Hospital since 2003 with patients with neurological conditions. Since 2008 he has worked with the Froedtert Hospital Parkison’s and Movement Disorders clinic. In addition he has presented at multiple events including support groups, symposiums and other engagements.

Bill Reinhard

Speaker Profile

Bill Reinhard graduated from the University of Wisconsin in 2002. He has been working at Froedtert Hospital since 2003 with patients with ...

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Codi Halbur Codi Halbur

I received my bachelor’s degree from the University of Wisconsin-Madison in Rehabilitation Psychology in 2012 and then received my ...

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60 Speaker-Profile-Speaker-Profile jplist-topic-Codi-Halbur 0 428360 428360 I received my bachelor’s degree from the University of Wisconsin-Madison in Rehabilitation Psychology in 2012 and then received my Doctorate of Physical Therapy from the University of Wisconsin-Madison in 2015. I have always had an interest in neurological rehabilitation. I have worked for Froedtert Hospital in Milwaukee, WI for 5 years ranging from both inpatient and outpatient neurological therapy. I am certified in the LSVT BIG program for patients with movement disorders and prior to COVID helped to lead a weekly community exercise class for persons with movement disorders. In my spare time, I myself enjoy exercising, being outdoors, cheering on the Badgers, Packers, Bucks, and Brewers, and spending as much time as possible with my wife and one year old son.

Codi Halbur

Speaker Profile

I received my bachelor’s degree from the University of Wisconsin-Madison in Rehabilitation Psychology in 2012 and then received my Doctorate of ...

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Becky Wellman, Ph.D, LPMT, MT-BC Becky Wellman, Ph.D, LPMT, MT-BC

Cleveland Clinic Foundation, Lou Ruvo Center

Dr. Becky Wellman is a board certified and licensed music therapist, and neurologic music therapy fellow at Cleveland Clinic Lou Ruvo ...

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61 Speaker-Profile-Speaker-Profile jplist-topic-Speaker 0 428442 428442 Dr. Becky Wellman is a board certified and licensed music therapist, and neurologic music therapy fellow at Cleveland Clinic Lou Ruvo Center for Brain Health where she works with individuals with neurodegenerative disorders and their caregivers. She is an adjunct instructor of human services/elder studies at Ivy Tech Community College of Indiana.

Becky Wellman, Ph.D, LPMT, MT-BC

Speaker Profile

Dr. Becky Wellman is a board certified and licensed music therapist, and neurologic music therapy fellow at Cleveland Clinic Lou Ruvo Center for ...

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Elizabeth Thiel Elizabeth Thiel

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62 Speaker-Profile-Speaker-Profile jplist-topic-Elizabeth-Thiel 0 428373 428373

Elizabeth Thiel

Speaker Profile

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Robin Riddle Robin Riddle

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63 Speaker-Profile-Speaker-Profile jplist-topic-Robin-Riddle 0 428371 428371

Robin Riddle

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Allyson Mayeux Allyson Mayeux

I am a member of the MSA Coalition Board of Directors and practice general internal medicine in Marshfield, WI, where I completed my ...

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64 Speaker-Profile-Speaker-Profile jplist-topic-Allyson-Mayeux 0 428367 428367 I am a member of the MSA Coalition Board of Directors and practice general internal medicine in Marshfield, WI, where I completed my residency in that specialty. I am a native of Louisiana and a graduate of LSU Medical School New Orleans. My family and I walked with my brother Hal on his journey with MSA.

Allyson Mayeux

Speaker Profile

I am a member of the MSA Coalition Board of Directors and practice general internal medicine in Marshfield, WI, where I completed my residency in ...

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Benson T. Massey, MD Benson T. Massey, MD

Benson T. Massey, MD is Professor of Medicine in the Division of Gastroenterology & Hepatology at the Medical College of Wisconsin, ...

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65 Speaker-Profile-Speaker-Profile jplist-topic-Benson-T--Massey 0 428366 428366 Benson T. Massey, MD is Professor of Medicine in the Division of Gastroenterology & Hepatology at the Medical College of Wisconsin, where he is also the Director of the GI Manometry Laboratory. He is past-president of the Dysphagia Research Society and serves as associate editor for the journal Dysphagia. He previously served as councilor for the American Neurogastroenterology and Motility Society and directs the ANMS visiting fellowship program in motility at MCW.

Benson T. Massey, MD

Speaker Profile

Benson T. Massey, MD is Professor of Medicine in the Division of Gastroenterology & Hepatology at the Medical College of Wisconsin, where he is ...

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Aikaterini Kompoliti, MD Aikaterini Kompoliti, MD

Aikaterini Kompoliti, MD, was born in Greece and completed her early education there, including medical school. After graduating from the ...

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66 Speaker-Profile-Speaker-Profile jplist-topic-Aikaterini-Kompoliti 0 428364 428364 Aikaterini Kompoliti, MD, was born in Greece and completed her early education there, including medical school. After graduating from the University of Patras Medical School, Greece, she pursued her interest in neuroscience by completing a residency in neurology at Northwestern University, Chicago, followed by a fellowship in movement disorders at Rush University Medical Center, Chicago. After the completion of her fellowship, she became a faculty member in movement disorders in the Department of Neurological Sciences at Rush University Medical Center where she is currently professor of neurology. She is the author and co-author of numerous publications. Her clinical interests as a principal investigator in research have focused on several therapeutic areas including studies to evaluate the safety and efficacy of new compounds to treat Parkinson's disease, Multiple System Atrophy, Neurogenic Orthostatic Hypotension, Tourette’s syndrome, functional movement disorders and dystonia. Furthermore, she is the educational director of the section of movement disorders and the director of the movement disorders fellowship at Rush University Medical Center.

Aikaterini Kompoliti, MD

Speaker Profile

Aikaterini Kompoliti, MD, was born in Greece and completed her early education there, including medical school. After graduating from the University ...

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Dr. Michael Guralnick Dr. Michael Guralnick

Dr. Guralnick received his medical degree from McGill University in Montreal, Canada and completed his urology residency at the University ...

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67 Speaker-Profile-Speaker-Profile jplist-topic-Dr--Michael-Guralnick 0 428358 428358 Dr. Guralnick received his medical degree from McGill University in Montreal, Canada and completed his urology residency at the University of Manitoba-Affiliated Teaching Hospitals in Winnipeg, Canada. He then completed a fellowship in female and reconstructive urology at Duke University Medical Center in North Carolina. His clinical and research interests include: male and female voiding dysfunction and incontinence, lower urinary tract reconstruction, and neurogenic bladder dysfunction.

Dr. Michael Guralnick

Speaker Profile

Dr. Guralnick received his medical degree from McGill University in Montreal, Canada and completed his urology residency at the University of ...

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Emma Saunders, BSc, RN, MRes Emma Saunders, BSc, RN, MRes

Emma Saunders MSA Nurse Specialist Samantha Pavey and Emma Saunders are MSA Nurse Specialists, working for the MSA Trust in the UK. ...

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68 Speaker-Profile-Speaker-Profile jplist-topic-Emma-Saunders jplist-topic-Speaker 0 420392 420392 Emma Saunders MSA Nurse Specialist Samantha Pavey and Emma Saunders are MSA Nurse Specialists, working for the MSA Trust in the UK. Their role is to provide information and support to people affected by MSA

Emma Saunders, BSc, RN, MRes

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Emma Saunders MSA Nurse Specialist Samantha Pavey and Emma Saunders are MSA Nurse Specialists, working for the MSA Trust in the UK. Their role is ...

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Matthew Beke Matthew Beke

Matthew Beke is a Clinical Dietitian working at the Normal Fixel Institute for Neurological Diseases. He is also a doctoral student ...

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69 Speaker-Profile-Speaker-Profile jplist-topic-Matthew-Beke 0 428357 428357 Matthew Beke is a Clinical Dietitian working at the Normal Fixel Institute for Neurological Diseases. He is also a doctoral student researching the effect of dietary fibers on GI symptoms in people with Parkinson's Disease. As a dietitian, he cares for patients with a variety of neurological conditions, including MSA. He hopes that by increasing the visibility of MSA to the public that this will generate interest in research and creating impactful nutrition therapies for this disease.

Matthew Beke

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Matthew Beke is a Clinical Dietitian working at the Normal Fixel Institute for Neurological Diseases. He is also a doctoral student researching the ...

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Beate Ritz, MD, Ph.D Beate Ritz, MD, Ph.D

Beate Ritz, MD, Ph.D. is a Professor of Epidemiology and Environmental Health Sciences and Neurology at UCLA. Her team investigates ...

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70 Speaker-Profile-Speaker-Profile jplist-topic-Beate-Ritz 0 428372 428372 Beate Ritz, MD, Ph.D. is a Professor of Epidemiology and Environmental Health Sciences and Neurology at UCLA. Her team investigates environmental and genetic factors that influence the risk of developing chronic brain diseases. Parkinson’s disease and the measurement of environmental factors have been a special focus of her lab for decades. She has been an NIH funded principle investigator of two of the largest community-based studies of Parkinson’s disease worldwide one located in the central valley of California, the other in Denmark. These studies identified environmental and genetic risk factors for Parkinson’s disease onset and progression using geographic information systems as well as metabolomic, genomic, and epigenomic approaches. Her studies showed how our genetic make-up makes some of us vulnerable to neurodegeneration when exposed to environmental toxicants. She is the Past President of the International Society of Environmental Epidemiology and has served on numerous National Academy of Sciences and California State Scientific Advisory panels and committees.

Beate Ritz, MD, Ph.D

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Beate Ritz, MD, Ph.D. is a Professor of Epidemiology and Environmental Health Sciences and Neurology at UCLA. Her team investigates environmental ...

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