Pam will describe the MSA Coalition’s research program highlighting the outcomes of some notable research projects. She will also point out some “not to be missed” research talks coming up on October 1 & 2.
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The MSA Coalition is a global leader in providing educational programs for MSA patients, care partners and healthcare providers. In this presentation, Don Crouse provides an overview of the MSA Coalition’s most important educational programs and explains how to find them on the msacoalition.org website.
This session focuses on the power of positive thinking and living your best life with MSA. MSA NJ Board Member, Victoria Pena-Cardinali, a licensed clinical social worker (LCSW) and Julia Landicho, a nursing student and MSA NJ volunteer speak with Barbara and Frank Tinari to discuss their journey with MSA. This inspirational couple speak candidly about how their lives changed since the MSA diagnosis and how they continue to live life to the fullest possible. Following their conversation, other members of the MSA NJ community share snapshots of their stories, thoughts and strategies in support of all those living with MSA.
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This presentation provides an overview of some of the mechanisms leading to the aggregation of alpha-synuclein. Following a description of some of the modifications that alpha-synuclein can undergo, it illustrates with two preclinical examples how these modifications can be targeted in order to counteract the aggregation process and prevent the demise of neurons.
In this talk I will discuss the challenges that health care workers and patients are confronted with and some solutions through a multidisciplinary approach. I will shortly discuss on the challenges in making the diagnosis, a few diagnostic pitfalls, the absence of cure, the consequences in these diagnostic challenges for obtaining support, drug availability (may be more of a problem in some countries than others), challenges in organizing transmural care. I will discuss the organization of a multidisciplinary team, and how health care workers and patients can contribute in quality improvement.
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