MSA Coalition

Welcome Video available at 12:00p ET

MSA Coalition - Through the Years

The MSA Journey or Who Lives in Your Village?

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MSA Coalition Financial Overview

Carol will present an overview of the 2020 financial results for the MSA Coalition. Click to View Session Materials 

Research Overview

Pam will describe the MSA Coalition’s research program highlighting the outcomes of some notable research projects. She will also point out some “not to be missed” research talks coming up on October 1 & 2.

Education & Resources

Click to View Session Materials The MSA Coalition is a global leader in providing educational programs for MSA patients, care partners and healthcare providers. In this presentation, Don Crouse provides an overview of the MSA Coalition’s most important educational...

Support Group International (Patient and Care Partners)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Support Group (Care Partner - East Coast/Central)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Support Group (Patient - East Coast/Central)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Support Group (Care Partners - West Coast/Mountain)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Support Group (Patient - West Coast/Mountain)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Introduction to Phase 2 Program in MSA

Inspirations: Living Life to the Fullest with MSA

This session focuses on the power of positive thinking and living your best life with MSA. MSA NJ Board Member, Victoria Pena-Cardinali, a licensed clinical social worker (LCSW) and Julia Landicho, a nursing student and MSA NJ volunteer speak with Barbara and Frank...

Alpha-synuclein and disease mechanisms in MSA

View English Recording View French Recording This presentation provides an overview of some of the mechanisms leading to the aggregation of alpha-synuclein. Following a description of some of the modifications that alpha-synuclein can undergo, it illustrates with two...

Multidisciplinary Approach for people with MSA

In this talk I will discuss the challenges that health care workers and patients are confronted with and some solutions through a multidisciplinary approach. I will shortly discuss on the challenges in making the diagnosis, a few diagnostic pitfalls, the absence of...

Sleep Issues in Multiple System Atrophy

Types of sleep issues experienced in MSA and how to diagnose and manage them.

Brain donation and the importance of advanced planning

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Global Community Partner Panel-Live Q&A with Translator

Dr Patrick Cras and Dr. Pierre-Olivier Fernagut will be LIVE to answer your questions. This session includes a live translator for our international community. Karen Walker, Chief Executive, MSA Trust will moderate this session.

Welcome & Fireside Chat: Connect Learn Inspire -- Where Have We Come From, Where Are We Going

Welcome & Fireside Chat: Connect Learn Inspire -- Where Have We Come From, Where Are We Going

Virtual Mix and Mingle - Networking Reception

Please join us to meet the MSA Coalition Board of Directors, Presenters and members of the international MSA community.

Management of Autonomic Failure

To provide an overview of the management of different aspects of autonomic failure in MSA. To highlight some of the pitfalls of management. To emphasize the role of multidisciplinary approach of management.

Sleep in MSA: From Stridor to REM sleep Behavior Disorder

Sleep disturbances are an intrinsic part of MSA. This talk will discuss the diagnosis and management of REM sleep behavior disorder, sleep apnea and stridor in patients with MSA.

Management of Motor Aspects of MSA

We will review the different motor aspects of MSA. We will discuss the management of parkinsonism, ataxia, and other motor symptoms in MSA.

Research Panel with Live Q&A

Research Panel with Live Q&A Clinical Research Updates Daniel Claassen MSA Coalition Collborative Core Program Vik Khurana A Blood Test for Distinguishing between Parkinson’s Disease and Multiple System Atrophy Gal Bitan The presentation describes our recent...

A young life interrupted - "stepping into the caregiving role at an unconventional age"

Topher and Adrienne, a current and former caregiver of mom’s with MSA share their stories, experiences, insights and lessons learned from being launched into a caregiver role at a younger age. They specifically dive into various aspects of the caregiving role that...

Anxiety, Depression, and Coping with Multiple System Atrophy

Anxiety, Depression, and Coping with Multiple System Atrophy

"World MSA Day" Candlelighting (Re-Broadcast ONLY)

"World MSA Day" Candlelighting (Re-Broadcast ONLY)

How Good Are We At Diagnosing MSA?

How Good Are We At Diagnosing MSA?

Medical Panel (medical) with Live Q&A: the Value of a Multidisciplinary Care Team

We will present recommendations for multidisciplinary care for MSA and show how this has been done in other neurologic disorders. Different specialists will discuss their role in caring for patients with MSA. Introduction & the Neurologist’s Role in an MSA Care...

MSA Coalition New Research Grantees

MSA Coalition New Research Grantees

Music Therapy

Music and Movement with Rhythmic Reminiscence™ Rhythmic Reminiscence™ is a music and movement program developed at Cleveland Clinic Lou Ruvo Center for Brain Health in Las Vegas, NV to help those who find traditional exercise programs challenging to keep moving....

Oh, The Places You Might Go: Traveling with MSA

Please join us for inspiration, ideas, and practical tips for traveling with MSA. As we discovered first-hand, it is possible, at many stages of MSA, to travel to a variety of places near and far, from bucket list trips to close-to-home vacation stays. The special time...

Improvisation & Laughter

Join Margot for Improvisational Theatre Games for people with MSA, Parkinson’s Disease, MS, ALS and their care partners is not just fun but therapeutic. There is evidence based research on the physical, emotional and spiritual benefits of play. Improv classes...

Closing Remarks

MSA Coalition Chair, Cyndi Roemer closes the books on the 2021 Virtual MSA Coalition Patient & Family Conference.  Cyndi thanks our sponsors and most of all our community for their trust and support.