Agenda

1
2021-09-20 On-Demand
2
2021-09-20 On-Demand
3

Speakers

Medical College of Wisconsin
2021-09-20 On-Demand Tom Chelimsky, MD,
4

MSA Coalition Financial Overview

Carol will present an overview of the 2020 financial results for the MSA Coalition. Click to View Session Materials 

Speakers

Treasurer
MSA Coalition Board of Directors
2021-09-21 On-Demand Carol Langer,
5

Research Overview

Pam will describe the MSA Coalition’s research program highlighting the outcomes of some notable research projects. She will also point out some “not to be missed” research talks coming up on October 1 & 2.

Speakers

Secretary, MSA Coalition Board of Directors, Chair, Research Committee
2021-09-22 On-Demand Pam Bower,
6

Education & Resources

Click to View Session Materials The MSA Coalition is a global leader in providing educational programs for MSA patients, care partners and healthcare providers. In this presentation, Don Crouse provides an overview of the MSA Coalition’s most important educational...

Speakers

Vice Chair
MSA Coalition Board of Directors
2021-09-23 On-Demand Don Crouse,
7

Support Group International (Patient and Care Partners)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Speakers

Care Partner
MSA Trust
2021-09-24 Live Sessions Ian Pickford,
8

Support Group (Care Partner - East Coast/Central)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Speakers

Capital Health, MSANJ Board of Directors
MSA Coalition
2021-09-24 Live Sessions Victoria Pena-Cardinali, LCSW, Tom Tait,
9

Support Group (Patient - East Coast/Central)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Speakers

MSA Coalition
Vanderbilt University, MSA Coalition
2021-09-24 Live Sessions Bill Underwood, Lisa Hale, LMSW,
10

Support Group (Care Partners - West Coast/Mountain)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

Speakers

MSA Coalition
2021-09-24 Live Sessions Diane Graham, Chidimma Nguma, MSN, GNP, ANP-BC, ACHPN,
11

Support Group (Patient - West Coast/Mountain)

In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region.  This session will be co-facilitated by a peer and a health care...

2021-09-24 Live Sessions Erin Taylor, LICSW, MSW, Jim Davis, Patient,
12

Speakers

Alterity Therapeutics
2021-09-27 On-Demand David Stamler, MD,
13

Inspirations: Living Life to the Fullest with MSA

This session focuses on the power of positive thinking and living your best life with MSA. MSA NJ Board Member, Victoria Pena-Cardinali, a licensed clinical social worker (LCSW) and Julia Landicho, a nursing student and MSA NJ volunteer speak with Barbara and Frank...

Speakers

Capital Health, MSANJ Board of Directors
Board Chair
MSA NJ
2021-09-27 On-Demand Victoria Pena-Cardinali, LCSW, Kymberli Roemer, Julia Landicho, Frank & Barbara Tinari,
14

Alpha-synuclein and disease mechanisms in MSA

View English Recording View French Recording This presentation provides an overview of some of the mechanisms leading to the aggregation of alpha-synuclein. Following a description of some of the modifications that alpha-synuclein can undergo, it illustrates with two...

Speakers

2021-09-27 On-Demand Pierre-Olivier Fernagut, PhD,
15

Multidisciplinary Approach for people with MSA

In this talk I will discuss the challenges that health care workers and patients are confronted with and some solutions through a multidisciplinary approach. I will shortly discuss on the challenges in making the diagnosis, a few diagnostic pitfalls, the absence of...

Speakers

MSA Belgium
2021-09-28 On-Demand Dr. Patrick Cras,
16

Sleep Issues in Multiple System Atrophy

Types of sleep issues experienced in MSA and how to diagnose and manage them.

Speakers

MSA Nurse Specialist
MSA Trust
MSA Trust
2021-09-28 On-Demand Samantha Pavey, Jill Lyons,
17

Speakers

Brain Support Network
2021-09-29 On-Demand Robin Riddle,
18

Global Community Partner Panel-Live Q&A with Translator

This live session provides the opportunity for Q & A with Dr. Pierre-Olivier Fernagut, ARAMISE and Dr. Patrick Cras, MSA Belgium, subsequent to their on-demand presentations earlier in the program. It is best to view their recordings: Alpha-synuclein and Disease...

Speakers

MSA Belgium
Chief Executive
MSA Trust
2021-09-29 Live Sessions Dr. Patrick Cras, Pierre-Olivier Fernagut, PhD, Karen Walker, Alain Ndayisaba ,
19

Speakers

Chair
MSA Coalition
Mayo Clinic
Mayo Clinic
2021-09-30 Live Sessions Cyndi Roemer, Wolfgang Singer, MD, Dr. Phillip Low,
20

Virtual Mix and Mingle - Networking Reception

Please join us to meet the MSA Coalition Board of Directors, Presenters and members of the international MSA community.

Speakers

2021-09-30 Live Sessions Sheila Lyons, Executive Director,
21

Management of Autonomic Failure

To provide an overview of the management of different aspects of autonomic failure in MSA. To highlight some of the pitfalls of management. To emphasize the role of multidisciplinary approach of management.

Speakers

Mayo Clinic
MSA Coalition
2021-10-01 Live Sessions Kamal Shouman, MD, Diane Adkins,
22

Sleep in MSA: From Stridor to REM sleep Behavior Disorder

Sleep disturbances are an intrinsic part of MSA. This talk will discuss the diagnosis and management of REM sleep behavior disorder, sleep apnea and stridor in patients with MSA.

Speakers

MSA Coalition
2021-10-01 Live Sessions Michael H. Silber, M.B.Ch.B., Elaine Douglas,
23

Management of Motor Aspects of MSA

We will review the different motor aspects of MSA. We will discuss the management of parkinsonism, ataxia, and other motor symptoms in MSA.

Speakers

Mayo Clinic
Treasurer
MSA Coalition Board of Directors
2021-10-01 Live Sessions Dr. Guillaume Lamotte, Carol Langer,
24

Research Panel with Live Q&A

Research Panel with Live Q&A Clinical Research Updates Daniel Claassen MSA Coalition Collborative Core Program Vik Khurana A Blood Test for Distinguishing between Parkinson’s Disease and Multiple System Atrophy Gal Bitan The...

Speakers

Vanderbilt, MSA Coalition Board of Directors, Medical Advisory Board Liaison
Harvard, MSA Coalition Board of Directors, Scientific Advisory Board Liaison
Secretary, MSA Coalition Board of Directors, Chair, Research Committee
2021-10-01 Live Sessions Daniel Claassen, MD, MS, Vik Khurana, MD, Gal Bitan, MD, Pam Bower,
25

A young life interrupted - "stepping into the caregiving role at an unconventional age"

Topher and Adrienne, a current and former caregiver of mom’s with MSA share their stories, experiences, insights and lessons learned from being launched into a caregiver role at a younger age. They specifically dive into various aspects of the caregiving role that...

Speakers

MSA Coalition
MSA Coalition
MSA Coalition
2021-10-01 Live Sessions Topher Schott, Adrienne Glusman, Patricia Libby,
26

Anxiety, Depression, and Coping with Multiple System Atrophy

Anxiety, Depression, and Coping with Multiple System Atrophy

2021-10-01 Live Sessions Gregory Pontone, M.D., M.H.S., Erin Williams,
27

"World MSA Day" Candlelighting (Re-Broadcast ONLY)

"World MSA Day" Candlelighting (Re-Broadcast ONLY)

2021-10-01 Live Sessions
28

Speakers

MSA Coalition Scientific Advisory Board Chair & Bishop Karl Golser Foundation
MSA Coalition
2021-10-02 Live Sessions Dr. Gregor Wenning, Neil Versel,
29

Medical Panel (medical) with Live Q&A: the Value of a Multidisciplinary Care Team

We will present recommendations for multidisciplinary care for MSA and show how this has been done in other neurologic disorders. Different specialists will discuss their role in caring for patients with MSA. Introduction & the Neurologist’s Role in an MSA Care...

2021-10-02 Live Sessions Elizabeth Coon, MD, Margaret Moutvic, MD, Rene Utianski, PhD, Cathy Shonley, CCC-SLP, Adele Pattinson, RDN, LD, CNSC, Laura Rhee, MD, Claudia Chou, MD, Erin Taylor, LICSW, MSW, Abraham Labrada-Santiago, MDiv, BCC, Tricia Stevens, RN, BSN, Liz Dyas, Carina Peritore,
30

Speakers

Secretary, MSA Coalition Board of Directors, Chair, Research Committee
2021-10-02 Live Sessions Pam Bower,
31

Music Therapy

Music and Movement with Rhythmic Reminiscence™ Rhythmic Reminiscence™ is a music and movement program developed at Cleveland Clinic Lou Ruvo Center for Brain Health in Las Vegas, NV to help those who find traditional exercise programs challenging to keep...

Speakers

Music Therapist, Neurologic Music Therapy-Fellow
Cleveland Clinic Lou Ruvo Center for Brain Health
Physical Therapist, Neuro Rehabilitation Services
Cleveland Clinic Lou Ruvo Center for Brain Health
2021-10-02 Live Sessions Becky Wellman, PhD, LPMT, MT-BC, Christy Ross, PT, DPT, GCS, CDP, MSCS,
32

Oh, The Places You Might Go: Traveling with MSA

Please join us for inspiration, ideas, and practical tips for traveling with MSA. As we discovered first-hand, it is possible, at many stages of MSA, to travel to a variety of places near and far, from bucket list trips to close-to-home vacation stays. The special time...

Speakers

MSA Coalition
MSA Coalition
2021-10-02 Live Sessions Patricia Libby, Elaine Douglas,
33

Improvisation & Laughter

Join Margot for Improvisational Theatre Games for people with MSA, Parkinson’s Disease, MS, ALS and their care partners is not just fun but therapeutic. There is evidence based research on the physical, emotional and spiritual benefits of play. Improv classes...

Speakers

Improv4wellness
2021-10-02 Live Sessions Margot Escott, MSW, LCSW,
34

MSA Patient-Only Gathering

Join Cathy & Isabelle to Connect Learn & Inspire.  This session is restricted to MSA patients.

2021-10-02 Live Sessions
35

Closing Remarks

MSA Coalition Chair, Cyndi Roemer closes the books on the 2021 Virtual MSA Coalition Patient & Family Conference. Cyndi thanks our sponsors and most of all our community for their trust and support.

Speakers

Chair
MSA Coalition
2021-10-02 Live Sessions Cyndi Roemer,