Agenda

1

Welcome

Welcome to the MSA Virtual Conference! Ice Breaker: Get to know fellow peers and attendees! Navigate to the 360 Lobby, just below the Lobby you will see the Attendee Dashboard. Click on the Forums icon to access discussion groups. Please use this time to...

2020-10-23 Meetings
2

Living with MSA

Click here for Session Handouts   Living with MSA Speakers    Emma Saunders Emma Saunders MSA Nurse Specialist ...

2020-10-23 Sessions 2
3

Neurogenic Orthostatic Hypotension: Diagnosis, Management, and Research

This session aims to define the etiology and clinical presentation of Neurogenic Orthostatic Hypotension. Furthermore it will explore conservative measures as well as available pharmacological interventions to treat the symptoms of Neurogenic Orthostatic Hypotension. ...

2020-10-23 Sessions 2
4

Lunch and Networking

Lunch and Networking

2020-10-23 Breaks
5

Meet & Greet Room - International

An informal gathering to meet other MSA families in your region. Start a conversation!

2020-10-23 Meet & Greet Sessions
6

Music Therapy and MSA

Click Here for Session Handout  Session Transcript  Music can be a powerful tool in supporting individuals with MSA and their families. In this session, Dr. Wellman will describe music therapy, explain how music therapy may impact those with...

2020-10-23 Sessions 2
7

It Takes a Village

A description of my personal journey through multiple system atrophy with my husband, and how we built our care team. Guidance on interaction with friends, family and professionals , and links to to many different helpful resources.Speakers  Carol...

2020-10-23 Sessions 2
8

Break

Break

2020-10-23 Breaks
9

MSA Brain Donation: The value to you, your family, researchers, and the future

Click here for Session Handout  Session Handout  Session Handout  Session Handout  MSA Brain Donation: The value to you, your family, researchers, and the futureSpeakers  Robin RiddleRobin learned about...

2020-10-23 Sessions 2
10

The Third Leg of the Stool: The importance of spirituality on the MSA Journey

Explanation of the importance of spiritual health, as part of a trio with physical and emotional health, when facing difficult illnesses.Speakers  Allyson MayeuxI am a member of the MSA Coalition Board of Directors and practice general internal medicine...

2020-10-23 Sessions 2
11

Break

Break

2020-10-23 Breaks
12

MSA: The Gut-Brain Axis and Nutrition

A discussion of the gut-brain axis and how it relates to MSA, current research related to the gut microbiome, and nutrition considerations and recommendations for people with MSASpeakers  Matt BekeMatthew Beke is a Clinical Dietitian working at the Normal...

2020-10-23 Sessions 2
13

Biohaven: Understanding Potential Treatments and Clinical Trials

Click here for Session Handouts  The session will describe the clinical trial process, clinical trials for medications in trial for MSA, and how an individual with MSA can prepare to participate in a clinical trial....

2020-10-23 Sessions 2
14

Break

Break

2020-10-23 Breaks
15

Regional Support Group: Pacific, Mountain, NW Central, SW Central, International Regions - Care Partners

Regional Support Groups  Pacific, Mountain, NW Central, SW Central, International Regions: Care PartnersFacilitators  Diane GrahamElaine Douglas

2020-10-23 Support Group Sessions
16

Regional Support Group: New England, Middle Atlantic, NE & SE Central, S Atlantic - Patients

Regional Support Group  New England, Middle Atlantic, NE & SE Central, S Atlantic Regions: PatientsFacilitators  Carol LangerHadley Ferguson

2020-10-23 Support Group Sessions
17

Regional Support Group: Pacific, Mountain, NW Central, SW Central, International Regions: Patients

Regional Support Group  Pacific, Mountain, NW Central, SW Central, International Regions: PatientsFacilitators  Cathy ChapmanCathy's diagnosis and journey with MSA-C began in the fall of 2012.  She resides in Lander, Wyoming with her husband...

2020-10-23 Support Group Sessions
18

Regional Support Group: New England, Middle Atlantic, NE & SE Central, S Atlantic - Care Partners

Regional Support Group  New England, Middle Atlantic, NE & SE Central, S Atlantic Regions: Care PartnersParticipants are invited to share their webcam and audio to participate in this interactive session. Facilitators  Cyndi...

2020-10-23 Support Group Sessions
19

Dinner Break

Dinner Break

2020-10-23 Breaks
20

MSA Coalition Through the Years

2020-10-23 Meetings
21

Meet & Greet Room - USA

An informal gathering to meet other MSA families in your region. Start a conversation!

2020-10-23 Meet & Greet Sessions
22

Meet & Greet Room - International

An informal gathering to meet other MSA families in your region. Start a conversation!

2020-10-23 Meet & Greet Sessions
23

Medical Panel

9:30AM  - 12:00PM EST  Medical Panel  Chelimsky Handout 1  Chelimsky Handout 2  Guralnick Handout  Massey Handout  The Movement Disorder(s) of...

2020-10-24 Sessions 2
24

Break

Break

2020-10-24 Breaks
25

Allied Health & Support Services with Q & A

12:15PM - 1:45PM Allied Health & Support Services with Q & A  Pre-Read: https://chicago.suntimes.com/platform/amp/2020/10/9/21505037/stacy-oliver-obituaryHalbur Handout  Reinhard Handout  Thiel...

2020-10-24 Sessions 2
26

Meet & Greet Room - International

An informal gathering to meet other MSA families in your region. Start a conversation!

2020-10-24 Meet & Greet Sessions
27

Lunch Break

Break

2020-10-24 Breaks
28

Research Panel

Khurana Handout  2:30 pm - 3:30 pm Research Panel  Research Horizons  SpeakerDaniel Claassen, MD, MS, Vanderbilt University Medical CenterDr. Daniel Claassen is a Neurologist who specializes in the...

2020-10-24 Sessions 2