Agenda
Monday, Sep 20, 2021
12:15 PM - 1:00 PM EDT
On-Demand
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2021-09-20 | On-Demand | |||
Monday, Sep 20, 2021 - Friday, Dec 31, 2021
10:00 AM - 11:00 PM EST
On-Demand
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2021-09-20 | On-Demand | |||
Monday, Sep 20, 2021 - Friday, Dec 31, 2021
10:00 AM - 11:00 PM EST
On-Demand
The MSA Journey or Who Lives in Your Village?Click here to view session materials SpeakersTO
![]() Medical College of Wisconsin
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2021-09-20 | On-Demand | Tom Chelimsky, MD, | ||
Tuesday, Sep 21, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
MSA Coalition Financial OverviewCarol will present an overview of the 2020 financial results for the MSA Coalition. Click to View Session Materials SpeakersCL
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2021-09-21 | On-Demand | Carol Langer, | ||
Wednesday, Sep 22, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
Research OverviewPam will describe the MSA Coalition’s research program highlighting the outcomes of some notable research projects. She will also point out some “not to be missed” research talks coming up on October 1 & 2. SpeakersPB
![]() Secretary, MSA Coalition Board of Directors, Chair, Research Committee
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2021-09-22 | On-Demand | Pam Bower, | ||
Thursday, Sep 23, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
Education & ResourcesClick to View Session Materials The MSA Coalition is a global leader in providing educational programs for MSA patients, care partners and healthcare providers. In this presentation, Don Crouse provides an overview of the MSA Coalition’s most important educational... SpeakersDC
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2021-09-23 | On-Demand | Don Crouse, | ||
Friday, Sep 24, 2021
10:00 AM - 11:00 AM EDT
Support Group
Support Group International (Patient and Care Partners)In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region. This session will be co-facilitated by a peer and a health care... SpeakersIP
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2021-09-24 | Live Sessions | Ian Pickford, | ||
Friday, Sep 24, 2021
10:00 AM - 11:00 AM EDT
Support Group
Support Group (Care Partner - East Coast/Central)In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region. This session will be co-facilitated by a peer and a health care... SpeakersVI
![]() Capital Health, MSANJ Board of Directors
TT
![]() MSA Coalition
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2021-09-24 | Live Sessions | Victoria Pena-Cardinali, LCSW, Tom Tait, | ||
Friday, Sep 24, 2021
11:00 AM - 12:00 PM EDT
Support Group
Support Group (Patient - East Coast/Central)In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region. This session will be co-facilitated by a peer and a health care... SpeakersBU
![]() MSA Coalition
LI
![]() Vanderbilt University, MSA Coalition
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2021-09-24 | Live Sessions | Bill Underwood, Lisa Hale, LMSW, | ||
Friday, Sep 24, 2021
1:00 PM - 2:00 PM EDT
Support Group
Support Group (Care Partners - West Coast/Mountain)In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region. This session will be co-facilitated by a peer and a health care... SpeakersDG
![]() MSA Coalition
CH
![]() University of Texas SW
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2021-09-24 | Live Sessions | Diane Graham, Chidimma Nguma, MSN, GNP, ANP-BC, ACHPN, | ||
Friday, Sep 24, 2021
2:00 PM - 3:00 PM EDT
Support Group
Support Group (Patient - West Coast/Mountain)In keeping with our traditional practices, the MSA Coalition is offering support group meetings during our virtual conference. Please select the patient or care partner session for your region. This session will be co-facilitated by a peer and a health care... SpeakersER
![]() Mayo Clinic
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2021-09-24 | Live Sessions | Erin Taylor, LICSW, MSW, Jim Davis, Patient, | ||
Monday, Sep 27, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
SpeakersDA
![]() Alterity Therapeutics
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2021-09-27 | On-Demand | David Stamler, MD, | ||
Monday, Sep 27, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
Inspirations: Living Life to the Fullest with MSAThis session focuses on the power of positive thinking and living your best life with MSA. MSA NJ Board Member, Victoria Pena-Cardinali, a licensed clinical social worker (LCSW) and Julia Landicho, a nursing student and MSA NJ volunteer speak with Barbara and Frank... SpeakersVI
![]() Capital Health, MSANJ Board of Directors
KR
![]() JL
![]() MSA NJ
FR
![]() MSA NJ
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2021-09-27 | On-Demand | Victoria Pena-Cardinali, LCSW, Kymberli Roemer, Julia Landicho, Frank & Barbara Tinari, | ||
Monday, Sep 27, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
Alpha-synuclein and disease mechanisms in MSAView English Recording View French Recording This presentation provides an overview of some of the mechanisms leading to the aggregation of alpha-synuclein. Following a description of some of the modifications that alpha-synuclein can undergo, it illustrates with two... SpeakersPI
![]() ARAMISE
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2021-09-27 | On-Demand | Pierre-Olivier Fernagut, PhD, | ||
Tuesday, Sep 28, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
Multidisciplinary Approach for people with MSAIn this talk I will discuss the challenges that health care workers and patients are confronted with and some solutions through a multidisciplinary approach. I will shortly discuss on the challenges in making the diagnosis, a few diagnostic pitfalls, the absence of... SpeakersDR
![]() MSA Belgium
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2021-09-28 | On-Demand | Dr. Patrick Cras, | ||
Tuesday, Sep 28, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
Sleep Issues in Multiple System AtrophyTypes of sleep issues experienced in MSA and how to diagnose and manage them. SpeakersSP
![]() JL
![]() MSA Trust
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2021-09-28 | On-Demand | Samantha Pavey, Jill Lyons, | ||
Wednesday, Sep 29, 2021 - Friday, Dec 31, 2021
4:00 AM - 11:00 PM EST
On-Demand
Brain donation and the importance of advanced planningClick here for session materials SpeakersRR
![]() Brain Support Network
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2021-09-29 | On-Demand | Robin Riddle, | ||
Wednesday, Sep 29, 2021
12:00 PM - 12:45 PM EDT
Live Webinar
Global Community Partner Panel-Live Q&A with TranslatorThis live session provides the opportunity for Q & A with Dr. Pierre-Olivier Fernagut, ARAMISE and Dr. Patrick Cras, MSA Belgium, subsequent to their on-demand presentations earlier in the program. It is best to view their recordings: Alpha-synuclein and Disease... SpeakersDR
![]() MSA Belgium
PI
![]() ARAMISE
KW
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2021-09-29 | Live Sessions | Dr. Patrick Cras, Pierre-Olivier Fernagut, PhD, Karen Walker, Alain Ndayisaba , | ||
Thursday, Sep 30, 2021
3:30 PM - 4:00 PM EDT
Live Webinar
Welcome & Fireside Chat: Connect Learn Inspire -- Where Have We Come From, Where Are We GoingView Welcome Remarks RecordingView Fireside Chat Recording SpeakersCR
![]() WO
![]() Mayo Clinic
DR
![]() Mayo Clinic
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2021-09-30 | Live Sessions | Cyndi Roemer, Wolfgang Singer, MD, Dr. Phillip Low, | ||
Thursday, Sep 30, 2021
4:00 PM - 4:45 PM EDT
Live Webinar
Virtual Mix and Mingle - Networking ReceptionPlease join us to meet the MSA Coalition Board of Directors, Presenters and members of the international MSA community. SpeakersSH
![]() MSA Coalition
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2021-09-30 | Live Sessions | Sheila Lyons, Executive Director, | ||
Friday, Oct 1, 2021
9:00 AM - 10:00 AM EDT
Live Webinar
Management of Autonomic FailureTo provide an overview of the management of different aspects of autonomic failure in MSA. To highlight some of the pitfalls of management. To emphasize the role of multidisciplinary approach of management. SpeakersKA
![]() Mayo Clinic
DA
![]() MSA Coalition
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2021-10-01 | Live Sessions | Kamal Shouman, MD, Diane Adkins, | ||
Friday, Oct 1, 2021
9:00 AM - 10:00 AM EDT
Live Webinar
Sleep in MSA: From Stridor to REM sleep Behavior DisorderSleep disturbances are an intrinsic part of MSA. This talk will discuss the diagnosis and management of REM sleep behavior disorder, sleep apnea and stridor in patients with MSA. SpeakersMI
![]() Mayo Clinic
ED
![]() MSA Coalition
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2021-10-01 | Live Sessions | Michael H. Silber, M.B.Ch.B., Elaine Douglas, | ||
Friday, Oct 1, 2021
10:30 AM - 11:30 AM EDT
Live Webinar
Management of Motor Aspects of MSAWe will review the different motor aspects of MSA. We will discuss the management of parkinsonism, ataxia, and other motor symptoms in MSA. SpeakersDR
![]() Mayo Clinic
CL
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2021-10-01 | Live Sessions | Dr. Guillaume Lamotte, Carol Langer, | ||
Friday, Oct 1, 2021
12:30 PM - 3:00 PM EDT
Live Webinar
Research Panel with Live Q&AResearch Panel with Live Q&A Clinical Research Updates Daniel Claassen MSA Coalition Collborative Core Program Vik Khurana A Blood Test for Distinguishing between Parkinson’s Disease and Multiple System Atrophy Gal Bitan The... SpeakersDA
![]() Vanderbilt, MSA Coalition Board of Directors, Medical Advisory Board Liaison
VI
![]() Harvard, MSA Coalition Board of Directors, Scientific Advisory Board Liaison
GA
![]() UCLA
PB
![]() Secretary, MSA Coalition Board of Directors, Chair, Research Committee
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2021-10-01 | Live Sessions | Daniel Claassen, MD, MS, Vik Khurana, MD, Gal Bitan, MD, Pam Bower, | ||
Friday, Oct 1, 2021
3:30 PM - 4:30 PM EDT
Live Webinar
A young life interrupted - "stepping into the caregiving role at an unconventional age"Topher and Adrienne, a current and former caregiver of mom’s with MSA share their stories, experiences, insights and lessons learned from being launched into a caregiver role at a younger age. They specifically dive into various aspects of the caregiving role that... Speakers |
2021-10-01 | Live Sessions | Topher Schott, Adrienne Glusman, Patricia Libby, | ||
Friday, Oct 1, 2021
3:30 PM - 4:30 PM EDT
Live Webinar
Anxiety, Depression, and Coping with Multiple System AtrophyAnxiety, Depression, and Coping with Multiple System Atrophy SpeakersGR
![]() John Hopkins
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2021-10-01 | Live Sessions | Gregory Pontone, M.D., M.H.S., Erin Williams, | ||
Friday, Oct 1, 2021
4:30 PM - 5:00 PM EDT
Recorded Webinar
"World MSA Day" Candlelighting (Re-Broadcast ONLY)"World MSA Day" Candlelighting (Re-Broadcast ONLY) |
2021-10-01 | Live Sessions | |||
Saturday, Oct 2, 2021
9:00 AM - 10:00 AM EDT
Live Webinar
SpeakersDR
![]() MSA Coalition Scientific Advisory Board Chair & Bishop Karl Golser Foundation
NV
![]() MSA Coalition
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2021-10-02 | Live Sessions | Dr. Gregor Wenning, Neil Versel, | ||
Saturday, Oct 2, 2021
10:30 AM - 12:30 PM EDT
Live Webinar
Medical Panel (medical) with Live Q&A: the Value of a Multidisciplinary Care TeamWe will present recommendations for multidisciplinary care for MSA and show how this has been done in other neurologic disorders. Different specialists will discuss their role in caring for patients with MSA. Introduction & the Neurologist’s Role in an MSA Care... SpeakersEL
![]() Mayo Clinic
MA
![]() Mayo Clinic
RE
![]() Mayo Clinic
CA
![]() Mayo Clinic
AD
![]() Mayo Clinic
LA
![]() Mayo Clinic
CL
![]() Mayo Clinic
ER
![]() Mayo Clinic
TR
![]() Mayo Clinic
LD
![]() MSA Coalition
CP
![]() MSA Coalition
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2021-10-02 | Live Sessions | Elizabeth Coon, MD, Margaret Moutvic, MD, Rene Utianski, PhD, Cathy Shonley, CCC-SLP, Adele Pattinson, RDN, LD, CNSC, Laura Rhee, MD, Claudia Chou, MD, Erin Taylor, LICSW, MSW, Abraham Labrada-Santiago, MDiv, BCC, Tricia Stevens, RN, BSN, Liz Dyas, Carina Peritore, | ||
Saturday, Oct 2, 2021
1:30 PM - 2:00 PM EDT
Live Webinar
SpeakersPB
![]() Secretary, MSA Coalition Board of Directors, Chair, Research Committee
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2021-10-02 | Live Sessions | Pam Bower, | ||
Saturday, Oct 2, 2021
2:00 PM - 2:30 PM EDT
Live Webinar
Music TherapyMusic and Movement with Rhythmic Reminiscence™ Rhythmic Reminiscence™ is a music and movement program developed at Cleveland Clinic Lou Ruvo Center for Brain Health in Las Vegas, NV to help those who find traditional exercise programs challenging to keep... SpeakersBE
![]() Music Therapist, Neurologic Music Therapy-Fellow
Cleveland Clinic Lou Ruvo Center for Brain Health
CH
![]() Physical Therapist, Neuro Rehabilitation Services
Cleveland Clinic Lou Ruvo Center for Brain Health
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2021-10-02 | Live Sessions | Becky Wellman, PhD, LPMT, MT-BC, Christy Ross, PT, DPT, GCS, CDP, MSCS, | ||
Saturday, Oct 2, 2021
2:45 PM - 3:15 PM EDT
Live Webinar
Oh, The Places You Might Go: Traveling with MSAPlease join us for inspiration, ideas, and practical tips for traveling with MSA. As we discovered first-hand, it is possible, at many stages of MSA, to travel to a variety of places near and far, from bucket list trips to close-to-home vacation stays. The special time... SpeakersPL
![]() MSA Coalition
ED
![]() MSA Coalition
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2021-10-02 | Live Sessions | Patricia Libby, Elaine Douglas, | ||
Saturday, Oct 2, 2021
3:15 PM - 3:45 PM EDT
Live Webinar
Improvisation & LaughterJoin Margot for Improvisational Theatre Games for people with MSA, Parkinson’s Disease, MS, ALS and their care partners is not just fun but therapeutic. There is evidence based research on the physical, emotional and spiritual benefits of play. Improv classes... SpeakersMA
![]() Improv4wellness
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2021-10-02 | Live Sessions | Margot Escott, MSW, LCSW, | ||
Saturday, Oct 2, 2021
3:45 PM - 4:45 PM EDT
Live Webinar
MSA Patient-Only GatheringJoin Cathy & Isabelle to Connect Learn & Inspire. This session is restricted to MSA patients. |
2021-10-02 | Live Sessions | |||
Saturday, Oct 2, 2021
3:45 PM - 4:00 PM EDT
Live Webinar
Closing RemarksMSA Coalition Chair, Cyndi Roemer closes the books on the 2021 Virtual MSA Coalition Patient & Family Conference. Cyndi thanks our sponsors and most of all our community for their trust and support. SpeakersCR
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2021-10-02 | Live Sessions | Cyndi Roemer, |