On-Demand Directory 2020
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Friday, Oct 2, 2020
9:45 AM - 10:30 AM EDT
Recorded Webinar
Welcome Remarks & IntroductionsSpeakers Cynthia Roemer, MSA Coalition Board ChairCyndi Roemer has served as the MSA Coalition Board Chair since 2017. She was her mother’s primary caregiver, and has been an advocate for the multiple system atrophy community since her mother lost... |
2020-10-02 | Sessions | |||
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Friday, Oct 2, 2020
10:45 AM - 12:00 PM EDT
Recorded Webinar
Headline Findings from the Multiple System Atrophy Trust Needs SurveysCLICK HERE FOR SESSION HANDOUT Complete Session Survey Presentation of results from MSA Needs Survey undertaken by the MSA Trust Speakers Andy Barrick, Deputy CEO, MSA Trust UK and Ireland Andy... |
2020-10-02 | Sessions | |||
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Friday, Oct 2, 2020
1:00 PM - 2:00 PM EDT
Recorded Webinar
Physical Therapy Perspectives: A Telehealth Case StudyCLICK HERE FOR SESSION HANDOUT This lecture will provide information regarding the evolution of the role of Physical Therapy in a time of telehealth. Barriers and benefits of telehealth services will be discussed as well as application... |
2020-10-02 | Sessions | |||
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Friday, Oct 2, 2020
1:00 PM - 2:00 PM EDT
Recorded Webinar
A Mindful Approach to Coping with MSAParticipants will learn: 1- What is mindfulness? 2 - What is stress? 3- Stress reaction 4- Relaxation response 5 - CBT skills 6 - Suggestions for mindfully coping with chronic illness 7 - Meditation and benefits of meditation 8 - Engage in a mindfulness... |
2020-10-02 | Sessions | |||
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Friday, Oct 2, 2020
2:15 PM - 3:15 PM EDT
Recorded Webinar
Role of Speech-Language Pathologist in the Care of People with MSACLICK HERE FOR SESSION HANDOUT Changes in speech and swallowing function are common in people with MSA. The Speech-Language Pathologist (SLP) is the primary professional focused on the evaluation and management of these disorders. In this... |
2020-10-02 | Sessions | |||
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Friday, Oct 2, 2020
2:15 PM - 3:15 PM EDT
Recorded Webinar
It Takes a Village: Building a Care TeamCLICK HERE FOR SESSION HANDOUT A description of my personal journey through multiple system atrophy with my husband, and how we built our care team. Guidance on interaction with friends, family and professionals , and links to to many different helpful... |
2020-10-02 | Sessions | |||
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Friday, Oct 2, 2020
2:15 PM - 3:15 PM EDT
Recorded Webinar
Comprehensive Management of Orthostatic HypotensionCLICK HERE FOR HANDOUT Complete Session SurveyThis session will go over basic aspects of neurogenic orthostatic hypotension and measures you can take to prevent it's symptoms, both pharmacological and... |
2020-10-02 | Sessions | |||
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Friday, Oct 2, 2020
3:30 PM - 4:30 PM EDT
Recorded Webinar
What You Need to Know About Palliative Care & Hospice CareCLICK HERE FOR HANDOUT Complete Session SurveyHospice and palliative care are related, but not identical, approaches to dealing with the quality of life of seriously ill people. This presentation explains their similarities and... |
2020-10-02 | Sessions | |||
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Friday, Oct 2, 2020
3:30 PM - 4:30 PM EDT
Recorded Webinar
Consumer-Based Technology to Support IndependenceCLICK HERE FOR HANDOUT Complete Session Survey Keara and Rachel are both occupational therapists and assistive technology professionals who will discuss various options for assistive technology (both high and low tech) to support independence. The... |
2020-10-02 | Sessions | |||
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Saturday, Oct 3, 2020
9:00 AM - 10:30 AM EDT
Recorded Webinar
Welcome Remarks & Medical Panel: Overview, Systems & TrendsCLICK HERE FOR PARKINSON'S HANDOUT CLICK HERE FOR UROLOGICAL HANDOUT CLICK HERE FOR MENDLIKMSA HANDOUT Complete Session Survey 9:00AM - 10:30AM EST Medical Panel: Overview, Systems &... |
2020-10-03 | Sessions | |||
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Saturday, Oct 3, 2020
12:15 PM - 2:15 PM EDT
Recorded Webinar
Support Care Panel: Allied Health & Support Services for MSACLICK HERE FOR EXERCISE YOUR SPEECH AND VOICE HANDOUTCLICK HERE FOR SWALLOWING STRATEGIES HANDOUTCLICK HERE FOR TAKE CARE OF VOICE HANDOUTCLICK HERE FOR THERAPEUTIC EXERCISE HANDOUTComplete Session SurveySpeech and Swallowing Management in... |
2020-10-03 | Sessions | |||
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Saturday, Oct 3, 2020
2:30 PM - 4:45 PM EDT
Recorded Webinar
Research Panel: Selected Research Projects & Clinical Trials in MSACLICK HERE FOR NATURAL HISTORY STUDY UPDATE HANDOUTCLICK HERE FOR CLINICAL TRIALS FOR MSA HANDOUTComplete Session SurveyNovel Diagnostic Markers & Status Update on Stem Cells as Treatment Approach to MSA I will be discussing the need for... |
2020-10-03 | Sessions |
View the recordings from the October 23rd - 24th event!
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Friday, Oct 23, 2020
12:00 PM - 1:00 PM EDT
Live Webinar
Living with MSAClick here for Session Handouts Living with MSA Speakers Emma Saunders Emma Saunders MSA Nurse Specialist ... |
2020-10-23 | Sessions 2 | |||
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Friday, Oct 23, 2020
12:00 PM - 1:00 PM EDT
Live Webinar
Neurogenic Orthostatic Hypotension: Diagnosis, Management, and ResearchThis session aims to define the etiology and clinical presentation of Neurogenic Orthostatic Hypotension. Furthermore it will explore conservative measures as well as available pharmacological interventions to treat the symptoms of Neurogenic Orthostatic Hypotension. ... |
2020-10-23 | Sessions 2 | |||
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Friday, Oct 23, 2020
2:00 PM - 3:00 PM EDT
Live Webinar
Music Therapy and MSAClick Here for Session Handout Session Transcript Music can be a powerful tool in supporting individuals with MSA and their families. In this session, Dr. Wellman will describe music therapy, explain how music therapy may impact those with... |
2020-10-23 | Sessions 2 | |||
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Friday, Oct 23, 2020
2:00 PM - 3:00 PM EDT
Live Webinar
It Takes a VillageA description of my personal journey through multiple system atrophy with my husband, and how we built our care team. Guidance on interaction with friends, family and professionals , and links to to many different helpful resources.Speakers Carol... |
2020-10-23 | Sessions 2 | |||
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Friday, Oct 23, 2020
3:15 PM - 4:15 PM EDT
Live Webinar
MSA Brain Donation: The value to you, your family, researchers, and the futureClick here for Session Handout Session Handout Session Handout Session Handout MSA Brain Donation: The value to you, your family, researchers, and the futureSpeakers Robin RiddleRobin learned about... |
2020-10-23 | Sessions 2 | |||
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Friday, Oct 23, 2020
3:15 PM - 4:15 PM EDT
Live Webinar
The Third Leg of the Stool: The importance of spirituality on the MSA JourneyExplanation of the importance of spiritual health, as part of a trio with physical and emotional health, when facing difficult illnesses.Speakers Allyson MayeuxI am a member of the MSA Coalition Board of Directors and practice general internal medicine... |
2020-10-23 | Sessions 2 | |||
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Friday, Oct 23, 2020
4:30 PM - 5:30 PM EDT
Live Webinar
MSA: The Gut-Brain Axis and NutritionA discussion of the gut-brain axis and how it relates to MSA, current research related to the gut microbiome, and nutrition considerations and recommendations for people with MSASpeakers Matt BekeMatthew Beke is a Clinical Dietitian working at the Normal... |
2020-10-23 | Sessions 2 | |||
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Friday, Oct 23, 2020
4:30 PM - 5:30 PM EDT
Live Webinar
Biohaven: Understanding Potential Treatments and Clinical TrialsClick here for Session Handouts The session will describe the clinical trial process, clinical trials for medications in trial for MSA, and how an individual with MSA can prepare to participate in a clinical trial.... |
2020-10-23 | Sessions 2 | |||
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Saturday, Oct 24, 2020
9:30 AM - 12:00 PM EDT
Live Webinar
Medical Panel9:30AM - 12:00PM EST Medical Panel Chelimsky Handout 1 Chelimsky Handout 2 Guralnick Handout Massey Handout The Movement Disorder(s) of... |
2020-10-24 | Sessions 2 | |||
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Saturday, Oct 24, 2020
12:15 PM - 1:45 PM EDT
Live Webinar
Allied Health & Support Services with Q & A12:15PM - 1:45PM Allied Health & Support Services with Q & A Pre-Read: https://chicago.suntimes.com/platform/amp/2020/10/9/21505037/stacy-oliver-obituaryHalbur Handout Reinhard Handout Thiel... |
2020-10-24 | Sessions 2 | |||
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Saturday, Oct 24, 2020
2:30 PM - 4:45 PM EDT
Live Webinar
Research PanelKhurana Handout 2:30 pm - 3:30 pm Research Panel Research Horizons SpeakerDaniel Claassen, MD, MS, Vanderbilt University Medical CenterDr. Daniel Claassen is a Neurologist who specializes in the... |
2020-10-24 | Sessions 2 |
