Patricia Libby lives in the Los Angeles community of Altadena, California. Her husband Joel Thvedt was diagnosed in 2015 with probable MSA-C following a year of unusual symptoms including sleep disturbances and gait and balance problems. Patricia and Joel immediately decided to do two things: (1) gather as much information as they could about MSA, and (2) travel as much as possible with their three sons. Joel battled MSA with grace and dignity, and a wonderful sense of humor, until his death in February 2020. Patricia and Joel met in 1984 when they were fellow students at UCLA Law School, and Patricia is currently an adjunct professor at the University of Southern California Gould School of Law and a legal writing coach in Los Angeles. Patricia served on the MSA Coalition’s General Advisory Council in 2020 and was delighted to join the Board in 2021 as the Interim Chair of the Advocacy Committee. She looks forward to continuing to help others in the MSA community as a tribute to Joel’s incredible attitude and positive outlook throughout his MSA journey.
Fri, Oct 1, 2021
3:30 PM - 4:30 PM EDT
Topher and Adrienne, a current and former caregiver of mom’s with MSA share their stories, experiences, insights and lessons learned from being launched into a caregiver role at a younger age. They specifically dive into various aspects of the caregiving role that differentiate younger caregivers from older ones touching on main points that area common thread in the young caregiver community. They also provide resources from young caregivers and welcome you, the young caregiver, to share your story as well!
Sat, Oct 2, 2021
2:45 PM - 3:15 PM EDT
Please join us for inspiration, ideas, and practical tips for traveling with MSA. As we discovered first-hand, it is possible, at many stages of MSA, to travel to a variety of places near and far, from bucket list trips to close-to-home vacation stays. The special time you spend with family and friends and the experiences you have while traveling will provide moments to savor and wonderful memories for all. Click here for Session Slides Click here for Sample Letter Click here for What is MSA Document