Robin learned about neurodegenerative decline when her late father, Larry, was diagnosed with progressive supranuclear palsy (PSP) in 2004. The donation of Larry’s brain in 2007 to Mayo Clinic in Jacksonville, Florida, was Robin’s first organization of a brain donation.  Her efforts to help MSA, PSP, Parkinson's, and Lewy body dementia families nationally became the nonprofit organization, Brain Support Network, in 2012.  Robin and BSN have arranged over 800 brain donations.